Is the correct response
a) to rant & rave giving the misleading impression that some ME/CFS patients are mentally ill.
Or
B) Take a more positive approach by promoting the work of Drs Fluge, Mella, Hornig, Montoya & Newton?
Maybe you can clarify your position for us @Seanko
Judging by your earlier comments, and review of the book, you seem to think conversion disorders are a valid diagnostic category. Do you think ME is psychosomatic? do you believe you have a "conversion disorder"? or do you just think we have been extricated from that category and we should distance ourselves from other unexplained diseases and leave them to rot in this category until someone discovers their organic pathology...And that that research will come about without any patients or advocates fighting for it?
earlier in this thread you said it didn't matter whether an illness was physical or mental, and that "Modern Medicine no longer differentiates between body & mind"
But then you say that Me patients should be meek and well behaved so they don't give the "impression they are mentally ill"
So it doesn't matter if it is mental or physical, but if someone has a mental illness their opinion can be ignored as irrelevant? How does one "sound" mentally ill? Are patients who have both ME and a mental illness not allowed to have a voice or an opinion? Is treatment decided for them without their consent?
This is exactly the sort of logic that makes some think it is essential to advocate against the sort of nonsense that is in this book. ie - that it is ignoring the reams of biological evidence, spreading the erroneous and outdated opinion that people with ME have a "conversion disorder" and cannot be trusted to report their own symptoms, and must be coerced into "treatments" which have been shown to cause harm to the majority of patients:
http://www.meassociation.org.uk/wp-...No-decisions-about-me-without-me-30.05.15.pdf
Finally you don't think we should loudly advocate for ourselves...but are criticizing our experts for not being loud enough?