TrixieStix
Senior Member
- Messages
- 539
the most important thing is to not exceed your "energy threshold" and to use "pacing". If you do something and you get a worsening of your symptoms immediately afterward or in the days following you did too much. So make sure anything you do, even physical therapy does not push your body beyond it's energy threshold. It will hurt you not help you!! Please make sure your physical therapist is aware of how "post exertional malaise" works and how it is harmful to those with ME/CFS.@Jessie 107 S A M E. I know EXACTLY how you feel, as that's how it is with me! Only I'm so damn tired it feels good to rest, which is good for me that I don't hate resting.
I'll be seeing a PM&R (Physical medicine and rehabilitation) specialist soon as well as a Rheumatologist, and right now my biggest ally is my Infectious Disease specialist.
Good luck to you!
Before I figured out that I had ME/CFS me and my doctors had the usual mindset that I should "push myself" even when I was feeling awful. That I should be exercising, etc. Unfortunately this was the exact opposite of what I should have been doing. Rather I should have been resting resting resting! Because of this I am now much much worse than I previously was and can barely tolerate any exertion at all
anym
ore, and have a much worse quality of life now compared to what it was when I first began having symptoms. Advocate for yourself and know that often with this disease the patient knows more than the doctors they see.