Thanks for that information NelliePledge, interesting.
Hi ryan31337, it was done at the Autonomic Unit at UCLH so they're the experts I think. I've had a previous ECG trace and it said 'normal variant of ECG which was sinus arrhythmia. I had a more recent heart check which showed only some mild and trace regurgitations which are apparently very common in the general population. I have rummaged around and now found my Autonomic Unit results (from Jan/2016), during 60 degree head up tilt:
1 min 113/64 93bpm
4 min 110/71 94bpm
7 min 115/69 91bpm
10 min 104/68 96 bpm
which do look OK.
Isometric exercise 120/73 & 74bpm before and 127/75 & 74bpm during
mental arithmetic 124/73 & 73bpm before and 128/74 & 78bpm during
cutaneous cold 121/67 & 74bpm before and 120/90 & 76bpm during (I couldn't tolerate this anywhere near how long I was supposed to, it was the hand in the bucket of icy water! I managed 30 seconds only)
hyperventilation 119/67 & 74bpm before and 111/72 (unknown bpm) during (I started to faint during this and had to stop at 20 seconds)
it says "respiratory sinus arrhythmia was present during deep breathing" (63-68bpm)
valsalva manoevre "was well performed" (can't remember what that was) and says BP profile was normal
said I had "minimal pooling in the feet only on head up tilt"
when they removed the cannula I had drop in BP and HR. Minimum HR and BP were 80/40 and 61bpm
Said I have no orthostatic hypotension, rise in HR for 20 seconds in hyperventilation, no evidence for PoTs or cardiovascular autonomic failure. So they said because of what happened when they removed the cannula it was suggestive of autonomic mediated syncope. But the 'diagnosis' was "tendency to autonomic mediated syncope" which isn't a firm diagnosis really and is unexplained.
Yes, they did give me the standard recommendations to take away, such as salt intake and all the usual!
Bearing in mind the above results, do you think I don't need further evaluation for PoTs? The testing was done at about 12.30pm-1pm BTW.