This post is being moved from the Biotoxin Illness thread. Its an old post dated Aug 2010:
Want to start a specific thread for this.
Testing so far:
HLAs: multisuseptable (4-3-53) and low MSH (1-5). Seemingly this is the worse combo one can have.
Tests three years ago (tested by an alternative clinic newly into biotoxin illness and not very savvy about it.. didnt think to have me check my house for mold or to test other important markers than the ones I wil llist below then handed me a script for csm.. then lyme doc was not convinced of all this biotoxin stuff and convinced me not to follow up)
leptin low
msh low
vip low
this was three years ago when I was not having CFS symptoms, more neuro symptoms.
Real Time Lab urine mycotoxin came back neg (I just heard from someone who has been through this who told me her labs were also negative but still had mycotoxin illness.. this is a random spot urine test)
IgE mold panel neg and IgG or IgM for stachy neg.
This year tested house for second time for mold.. located.. remediated... stachy. Given we all have a "dreaded" HLA type here.. two of us tested for low msh gene as well, we are getting out of the house, getting rid of most furniture and having the house cleaned. Most likely will not return. Stachy does not go air borne so its a difficult mold to locate. We did have a proper remediation with rooms sealed off, blowers, scrubbers, etc but there was cross contamination that we do know of on MBR carpet coming out of bathroom with the stachy and one spore was found (equates to 7 spores per cu meter) in LR which is one story down from bathroom and most likely from cross contamination. Thats not a lot, but we dont know how much and may never since stachy does not stay air borne for more than 2 hours.
We are ordering an ERMI to get some idea, but we are convinced to get out of here without our belongings.
Running shoemaker labs next (along with XMRV-HGRV) to get a clearer pic. (I do have XMRV PCR pos)
Would love to hear experiences from others.