Bhupesh Prusty: "we are on a perfect path for identifying potential transferable factors in ME/CFS blood that can cause mito dysfunction..." GoFundMe

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babeng

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56
paul80 said:
I'd like to donate to him but Is there any point in giving him a small donation like $20? i suppose it all adds up.
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I'd like to support his work too. Is there any chance someone with know how could set up a dundraising campaign for him? Like a GoFundMe campaign or something?
If we could track the donations I'm sure many more would donate
 
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babeng

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Josch2306

Josch2306

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11
babeng said:
I'd like to support his work too. Is there any chance someone with know how could set up a dundraising campaign for him? Like a GoFundMe campaign or something?
If we could track the donations I'm sure many more would donate
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As you mentioted the GoFundME campaign has just started. :thumbsup:

Morever I quote Dr. Prusty, who I was talking to regarding LAB support etc.:

"... I am very much thankful to all our well-wishers who are helping us to move ahead with our work. A couple of CFS patients from Germany have just stared a fund raising to help my lab. You can find the details here. (https://www.gofundme.com/f/gofundmecfs-support-scientific-research-mecfs?utm_medium=copy_link&utm_source=customer&utm_campaign=p_lico+header)

I think you can support us here. Also if someone is interested in helping us in USA, you can always do it through HHV-6 Foundation, USA. The foundation has always passed on the entire money to my lab whenever someone donates.

Thanks once again.

Best wishes,
Bhupesh ..."
 
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Hopeful1976

Senior Member
Messages
346
I Just donated.
Somehow, I feel like Prusty will find answers sooner than Davis. It pains me to say it, and feel it, but I've seen a lot of money go through omf the last years, and the 'something in the serum' is literally no further forward... it makes no sense. To me, this line of enquiry is the most plausible (they've seen how our cells are behaving in our serum/healthy serum ect); yet why is is not being 100% studied? (Omf are looking at many other lines of enquiry eg mold/blood call deformabilty ect).
To me, Prusty is onto something, and seeks to find it, with vigor. We need this to happen now, not in 5 years or 10 years time.
 
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raghav

Senior Member
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818
Location
India
Can we ask OMF and SolveMECFS to fund this effort ? Somehow takeout a portion of the donations in their kitty and send it to Prusty. I think 100k will be doable by these two groups.
 
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Yuno

Senior Member
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118
bit.ly/gofundmecfs. SHARE & DONATE FOR PRUSTY LAB 🇩🇪

GOfundMECFS | Supporting scientific research on ME/CFS

👉 bit.ly/gofundmecfs

++ German version below | Deutsche Version siehe unten ++

A scientist and his team do research for millions of sufferers. ME/CFS is not uncommon, but is rarely diagnosed correctly due to a lack of knowledge and awareness. Government funded research, therapies and treatments are lacking worldwide. Dr. Bhupesh K Prusty (Institute for Virology and Immune Biology, Julius-Maximilians-University of Wuerzburg, Germany) wants to change this. We want to support him in his efforts.

Our goal: at least 30.000 Euro within 3 months for an important project by “PRUSTY LAB”.

It’s realization could be the next major step to better understand and in the best case to treat the disease ME/CFS.

***

We are a group of ME/CFS patients who would like to support scientific research in the field of ME/CFS as there is an urgent need to do more research in this area of science. All funds raised will go to the non-profit HHV6 Foundation (1) and will be donated to Dr. Bhupesh Prusty for his research.

***

ℹ️ https://www.gofundme.com/f/gofundmecfs-support-scientific-research-mecfs

++ Deutsche Version ++

TEILE & SPENDE FÜR PRUSTY LAB 🇩🇪

GOfundMECFS | Unterstütze die biomedizinische Forschung im Bereich ME/CFS

👉 bit.ly/gofundmecfs

Ein Wissenschaftler und sein Team forschen für Millionen Erkrankter. ME/CFS ist eine häufige Erkrankung, wird aber aufgrund mangelnden Wissens und fehlenden Bewusstseins nur selten richtig diagnostiziert. Staatlich finanzierte Forschungen, Therapien und Behandlungen fehlen weltweit.
Dr. Bhupesh Prusty (Institut für Virologie und Immunbiologie, Julius-Maximilians-Universität Würzburg, Deutschland) will das ändern. Wir wollen ihn dabei unterstützen.

Unser Ziel: mindestens 30.000 Euro innerhalb von 3 Monaten für ein wichtiges Forschungsprojekt des „Prusty Labors“ (engl.“ PRUSTY LAB“).

Dessen Durchführung könnte der nächste entscheidende Schritt sein, die Erkrankung ME/CFS besser zu verstehen und im besten Fall behandeln zu können.

***

Wir sind eine Gruppe von ME/CFS-Patienten, die die wissenschaftliche Forschung auf dem Gebiet von ME/CFS unterstützen möchte, da der dringende Bedarf an Forschung in diesem Bereich der Wissenschaft besteht. Alle Spenden gehen an die gemeinnützige HHV6-Foundation (1) und werden Dr. Bhupesh Prusty für seine Forschung zur Verfügung gestellt.

***

ℹ️ https://www.gofundme.com/f/gofundmecfs-support-scientific-research-mecfs
***

#GOfundMECFS #MECFS #PRUSTY
 

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babeng

Messages
56
Hopeful1976 said:
To me, this line of enquiry is the most plausible (they've seen how our cells are behaving in our serum/healthy serum ect); yet why is is not being 100% studied? (Omf are looking at many other lines of enquiry eg mold/blood call deformabilty ect).
Click to expand...
The most important thing OMF has done is imo to create a lasting network of researchers. It seems though that they have prioritized new research centers and other projects over the “something in the blood” work. Ron has said that they need a new high throughput version of the nanoneedle for this work. They have chosen to fund other projects over this - perhaps because they believed a high throughput nanoneedle would get a NIH grant!? I’m also a bit confused over this. All I know is that I trust Ron 100%.
 
paul80

paul80

Senior Member
Messages
298
Just donated, hopefully the news of this fundraiser reaches a good amount of the m.e communities. This is the only m.e forum i use and i shared on twitter but i don't have many followers.
 
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Hopeful1976

Senior Member
Messages
346
babeng said:
The most important thing OMF has done is imo to create a lasting network of researchers. It seems though that they have prioritized new research centers and other projects over the “something in the blood” work. Ron has said that they need a new high throughput version of the nanoneedle for this work. They have chosen to fund other projects over this - perhaps because they believed a high throughput nanoneedle would get a NIH grant!? I’m also a bit confused over this. All I know is that I trust Ron 100%.
Click to expand...
I agree with everything you have said. I'm just so confused why it hasn't had the focus I really feel it should've...
 
R

raghav

Senior Member
Messages
818
Location
India
What method or equipment is Prusty using to detect the something in the serum ? Definitely not the nanoneedle. So what throughput method is he using to identify the culprit ?
 
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raghav

Senior Member
Messages
818
Location
India
Hopeful1976 said:
So many people donating 😁 So amazing to see 😊 up to 10,000 already. Our community are something special!
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Right now it is 11095 Euro and counting. :thumbsup:

BTW this is from the newsletter posted by another member on this forum from Naviaux's lab -
http://naviauxlab.ucsd.edu/wp-content/uploads/2019/12/Naviaux-Lab-Newsletter-Winter-2019_v10_sm.pdf

Using a new, cell-based assay system, we are hot on the trail of both the identity and the biological control of the activity in ME/CFS blood that causes fatigue. This “fatigue factor” looks like it could be the same thing that coordinates the mitochondrial and metabolic features of the cell danger response (CDR) and inflammation5, changes impedance in the nanoneedle10, inhibits recovery from illness by blocking the healing cycle9, induces a dauer-like state11, and triggers collagen remodeling over time that can cause acquired forms of Ehlers Danlos-like syndromes. If successful, these studies will help fill in missing details in how suramin, copaxone, and elamipretide (SS31) might work to treat ME/CFS.

Just curious to know what the new cell based assay system is ? Maybe Intellectual property of Naviaux or Prusty ? Hope they reveal what it is. Must be something powerful enough to sift through all the thousands and thousands of proteins, enzymes, cytokines and what not is found in the serum.
 
Rufous McKinney

Rufous McKinney

Senior Member
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13,489
raghav said:
and triggers collagen remodeling over time that can cause acquired forms of Ehlers Danlos-like syndromes.
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This part jives with my- its degrading the collagen theory...Not MY theory but I like the theory. So I really like seeing it included here in Red. It creates the path to bridge the mechanical theories with other theories.

New Cell Assay System.

?

How are these things so secretive? Nobody else works there in his lab? If your publishing something, how can there be we know nothing about how something was assayed.

If its a For Profit motive- thats a bit concerning....would need disclosure.
 
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