Best special forum for Lyme disease?

Wonkmonk

Senior Member
Messages
1,237
Location
Germany
Hi everyone,

I have some symptoms that seem to persist despite doxycycline therapy and I have some more in-depth questions about Lyme treatment.

Since this seems to be more like a niche topic with not a whole lot attention on this board, I would ask what forum or online discussion group (e.g., on facebook etc.) would be recommended for a more in-depth discussion about how to deal with possible Lyme treatment failure.

I would be thankful for any suggestions.
 

brenda

Senior Member
Messages
2,306
Location
UK

Carl

Senior Member
Messages
490
Location
United Kingdom

brenda

Senior Member
Messages
2,306
Location
UK
I do not believe in Rife because it has no scientific evidence, it's important to Believe in it because it's all in a persons mind whether it works or not. It has only placebo effects IMO. I am in favour of alternative treatments if they have proven scientific backing.

This person's facebook page and he also has a forum linked below
The forum but people cannot post to it. That has never been possible.
Well if medical doctors, who operate at a very high standard, as with everything in Germany, use rife, then I have no qualms in following their example.

Placebo has no place in my treatment for Lyme, as I do not believe that removal of symptoms means it is gone. Having symptoms or not makes no difference, I will continue treatment for the rest of my life as many doctors now think that it cannot be eradicated and will always come back unless it was treated *effectively* early on with more than one abx.

There are videos moreover showing the destruction of the bacteria when exposed to certain frequencies. But I am not here to convince you of anything.
 

SWAlexander

Senior Member
Messages
2,273
Thanks Brenda.

Revisiting a video produced by Johns Hopkins Medicine, I was once again fascinated by the mention of 'white matter,' a subject that rarely comes up in discussions of ME/CFS.

Excerpt:
“Patients often tell us that they have difficulty with memory, with multi-tasking, and we've found that, in fact, that is true on detailed neuro-cognitive testing. Patients that have persistent symptoms often have decrements in their cognitive testing.

A fascinating discovery we're making is a correlation in these cognitive deficits with actual imaging of the brains using sophisticated techniques of functional MRI scanning and white matter scanning in the MRI.

These early findings suggest that there may be a connection between the cognitive symptoms patients report and the actual changes on brain anatomy using highly sensitive MRI scanning.”

Would you have additional information regarding white matter?
 
Last edited:

brenda

Senior Member
Messages
2,306
Location
UK
Thanks Brenda.

Revisiting a video produced by Johns Hopkins Medicine, I was once again fascinated by the mention of 'white matter,' a subject that rarely comes up in discussions of ME/CFS.

Excerpt:
“Patients often tell us that they have difficulty with memory, with multi-tasking, and we've found that, in fact, that is true on detailed neuro-cognitive testing. Patients that have persistent symptoms often have decrements in their cognitive testing.

A fascinating discovery we're making is a correlation in these cognitive deficits with actual imaging of the brains using sophisticated techniques of functional MRI scanning and white matter scanning in the MRI.

These early findings suggest that there may be a connection between the cognitive symptoms patients report and the actual changes on brain anatomy using highly sensitive MRI scanning.”

Would you have additional information regarding white matter?
No sorry.
 
Back