BBC Radio 5 Live Sleep Expert Uses SEID (Over ME/CFS)

[CantThink]

This surprised/shocked me.

I was just listening to BBC Radio 5, and they have a regular guest who is a sleep doctor on. At 00.40 a lady called in about her daughter who she said has CFS, and sleep issues...

When the presenter asked the sleep expert about CFS, he said something like: you told us the correct name for CFS....
Expert: yes, SEID (he pronounced it SEED). Systemic Exercise Intolerance Disease... Then corrected to Exertion (!!... A lot of us predicted people are going to confuse exertion with exercise).

 

[CantThink]

P.S. he did also then say something along the lines of: also know as M.E. ... Myalgic Encephalomyelitis... or Chronic Fatigue Syndrome.

 

[Mij]

They have mistakenly said disorder instead of disease on one channel here.

 

[SOC]

I find it a bit unfortunate that the expert automatically assumed that person had SEID just because the were diagnosed in the UK with CFS. It is not an automatic switch CFS=SEID, especially if Fukuda or Oxford were used in the diagnosis.

Nevertheless, I appreciate the he is trying to raise awareness.

 

[CantThink]

They have mistakenly said disorder instead of disease on one channel here.

@Mij

He might have said disorder - hmmm! I was so shocked, as I didn't expect the term to be adopted here so quickly (or necessarily at all). I was trying to take it in but I'm really trying to sleep (as usual) so I might have missed the disorder versus disease.

 

[charles shepherd]

Was this Professor Jim Horne - who takes an interest in ME/CFS? Professor Horne also came to the MRC workshop in Oxford that was organised by the MRC Expert Group on ME/CFS.

 

[Cheshire]

Was this Professor Jim Horne - who takes an interest in ME/CFS? Professor Horne also came to the MRC workshop in Oxford that was organised by the MRC Expert Group on ME/CFS.

Yes

The programm can be listened to there
http://www.bbc.co.uk/programmes/b0536ksc

 

[CantThink]

Yes
View attachment 10076
The programm can be listened to there
http://www.bbc.co.uk/programmes/b0536ksc

Thank you for checking

 

[CantThink]

Was this Professor Jim Horne - who takes an interest in ME/CFS? Professor Horne also came to the MRC workshop in Oxford that was organised by the MRC Expert Group on ME/CFS.

It was apparently. I felt it was good that he fairly reflected the disease to the general public and being a professor, his opinion counted (or should count).