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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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:Retro mad: For the love of God that's nothing but Emotional and Mental Support focused on lifestyle management. That might help their depression but not their ME/CFS.
The sadistic side of me sometimes wishes that all the universal blood donors with this disorder could give blood to all those who deny or cover up this disorder saying that it's psychiatric in nature. Force them to get at least three blood donations from three different people spread out over three years. Then give those folks about two years and see what develops.
Bet you that several of those disbelievers and deniers would be going crazy completely wiped out barely able to physically function and yet feeling like their brain and insides are crawling the walls. Does this make me a bad person that every once in a blue moon if think about this? Truthful I wouldn't wish this on anyone. But sometimes well...
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Prof Findlay (who runs the Essex Clinic) also promoted Lightning Process on a 2007 BBC Radio 4 ‘You and Yours’ series on ME:
Response from editor, You and Yours: ME: 30 July 2007
August 3, 2007 — meagenda
http://meagenda.wordpress.com/2007/08/03/response-from-editor-you-and-yours-me-30-july-2007/
Findlay did do a Lighting Process pilot back in 2007 (with Phil Parker in the background), along with Gerri de Vries who was senior OT at the Essex clinic and who had trained as a Lightning Trainer. Findlay and Gerri de Vries gave a talk on Lightning at the 2007 Melvin Ramsay Society Conference.
But Professor Findlay (who runs the Essex Clinic mentioned in the BBC South report), now appears to have jumped on the NLP/Life Coaching bandwagon with his very own version of Lightning Process (see below).
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Professor Findlay is now advocating his own version of Lightning Training – a 3 day training called Neuro Behavioural Training (NeBeT).
And If Professor Findlay’s NeBeT sounds suspiciously like it is based on CBT and Lightning Process – thats because it is!:
http://www.nebet.co.uk/
Occupational Therapy promotes independent living, both physically and psychologically. It aims to reduce disability and maintain or enhance functional skill levels in everyday activities, including self care, work, education and leisure.
Clinical Hypnotherapy works by using an altered state of consciousness to elicit deeply relaxed responses from the nervous system. It also uses techniques to heighten awareness and enable you to make positive changes.
Neuro Linguistic Programming studies the structure of our subjective experience and offers techniques help increase awareness and change thinking and behaviour.
Cognitive Behavioural Therapy works on the premise that the way you think affects the way you behave. Being able to look at things from a different perspective, rationalising your thoughts and practising doing things a different way can alter the way you feel and act.
Life Coaching is a form of counselling for a person who has reached a point in their life when they need to reflect on where they are at the moment and where they want to be in the future. It helps plan a path from the present state to the desired state.
HOW IS THE TRAINING STRUCTURED?
The training takes place over three consecutive days and lasts for approximately 4 hours per day but does vary depending on the size of the group. In addition, there are 2 follow up sessions.
WHO ARE THE TRAINERS?
Susan Codd and Audrey Norman are the Trainers. Both have both worked with Professor L J Findley, Consultant Neurologist in the field of CFS/ME for over 15 years.
Susan has trained in Occupational Therapy, Clinical Hypnotherapy and Cognitive Behaviour Therapy.
Audrey has trained in NLP, Clinical Hypnotherapy, Life Coaching and Counselling.
NeBeT:
It is influenced by many different therapies, treatments and theories including occupational therapy, clinical hypnotherapy, cognitive behaviour therapy, neurolinguistic programming and life coaching .
It has been developed by Susan Codd, Occupational Therapist and Clinical Hypnotherapist, together with Audrey Norman, NLP Practitioner, Clinical Hypnotherapist, Life Coach and Relate Counsellor.
Professor Leslie Findley, Consultant Neurologist and Clinical Director of the National ME Centre and Centre for Fatigue Syndromes in Essex has contributed to its development and Ged Codd, Chartered Physiotherapist and Judith Harding, Dietician and Nutritionist, both specialists in the management of CFS/ME have also contributed their expertise to aspects of the training.
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What an NLP bandwaggon jumper Prof Findlay is!