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Hello community I have been dealing with a muscle condition since I was 19. I am now 49 y/O male. At age of 19 I was practising the guitar and noticed slight twitches at the top of my forearms. Over the coming weeks they started popping up In different parts of my body. I was very active at the time so I just kept playing sports and guitar and other thing, until slowly over the years I was unable to do any of them. The weakness is now beginning to make it difficult to walk. Every muscle in my body is affected and weak.
I've seen too many neurologists and metabolic specialists to mention. One said my homocysteine levels were elevated long ago and apparently low B2 levels can cause this.
I try to supplement it. Different doses different brands yet the same thing happened every time. I wake the day after taking it feeling much weaker and overall just disgusting. I experimented with foods high in b2 I ate a bag of spinnach. Woke the next day feeling exactly as if I'd taken B2 tablets.
I saw a geneticist 9 years ago and he diagnosed me with Glutaric Acideria type ii adult which is a rare condition affecting muscles and b2 is the only treatment for it. ..I saw that doctor again last week and upon repeating the blood test he said I was misdiagnosed and do not have that condition so I am back to square one.
Does anyone else have a problem reacting to B2 in this manner ? Thanks for reading ..dan
I've seen too many neurologists and metabolic specialists to mention. One said my homocysteine levels were elevated long ago and apparently low B2 levels can cause this.
I try to supplement it. Different doses different brands yet the same thing happened every time. I wake the day after taking it feeling much weaker and overall just disgusting. I experimented with foods high in b2 I ate a bag of spinnach. Woke the next day feeling exactly as if I'd taken B2 tablets.
I saw a geneticist 9 years ago and he diagnosed me with Glutaric Acideria type ii adult which is a rare condition affecting muscles and b2 is the only treatment for it. ..I saw that doctor again last week and upon repeating the blood test he said I was misdiagnosed and do not have that condition so I am back to square one.
Does anyone else have a problem reacting to B2 in this manner ? Thanks for reading ..dan