b12 nightmare

Messages
3
Likes
6
hello everyone,
hope your all ok today!

Just wondering if anyone can offer any advice... I am been treating lye disease for a couple of years.. got to a point where i was functioning not quite 100% maybe 80.. however I have developed chemical and food sensitivities in the last 6 months ... I was down to 3 foods for a while but have luckily added in 10 or so since then.... I have become quite depleted in a lot of nutrients and working on building them back up again.

B12 symptoms where kicking in cold feet , weakness in chest and breathlessness /sighing .. tried methyl b12 for a couple of weeks and had a weird racing brain reaction / my skin peeled on my hands and I felt like I was about to jump out of my body constantly... switched to cyano had another horrible reaction similar but the added misery of constant internal vibrations from head to toe..

I am now trying hydrox I am on a tiny dose a day 100mg and the good news is the vibrations are gone my mood is better but feel so out of it so sleepy and slightly stoned with a tiny bit of body anxiety nothing like what was happening my memory is a bit rubbish as well..also since taking any sort of b12 I have increased nephropathy my feet are cold and feel weird and painful to stand on in bare feet - heart palps are also improved but still there.

I also have tried methy folate couldn't tolerate so upped my green veg - i stopped eating green veg yesterday and feel better for it but how do I get folate in?

also eating bananas / coconut water and taking zinc, vit d , magnesium and Iron - I am so sensitive to supps that is takes a while to add them in ..

What does anyone think am I on the right path with the hydrox or is it going to go pear shaped I dont think high doses via a shot will work for me at this time but I just want to know If I am doing the right thing or if anyone has any advice or if they had any similar reactions to hydrox?

I think its quite obvious there is a gene mutation maybe mthfr... I can't really justify the testing for the moment so looking to figure out this methylation mystery by trial and error - this b12 thing is so tricky to get right
 
Last edited by a moderator:

Wishful

Senior Member
Messages
3,083
Likes
5,292
Location
Alberta
Does increasing B12 have any noticeable benefits? If not, you could try minimizing it in your diet.

Do your chemical and food sensitivities have a consistent delay? I'm all too familiar with type IV sensitivity, which has a very consistent delay. I have other sensitivities, but they vary in their mechanisms.

It's reassuring to see that someone else has 'sighing' as a symptom. I don't know what it means, but it's there.

I have become quite depleted in a lot of nutrients and working on building them back up again.
We're all different. I lived on cornstarch for a year or so, and aside from sore gums if I forgot to take the occasional VitC tablet, I didn't notice any signs of nutrient deficiency. My experience certainly convinced me that we don't run out of nutrients all that quickly, even on a nutrient-free diet.
 
Messages
3
Likes
6
Hey Wishful ,
Thanks for the reply ! Supplementing with B12 increased My symptoms .. I’m now left feeling worse than when I was deficient . I have gotten worse as the day went on with the hydrox so I think I will just have to focus on foods a bit more going forward .. yes some have a delay some are instant I actually wonder if there is a link between visual and reactions - which sounds like a mental issue which I suppose it is but the reactions are very physical . Yes the sighing takes me by surprise sometimes .. always good to hear someone in the world is experiencing something similar it makes it less weird 😂
That’s amazing how little you lived off - i couldn’t take any supps either so there was definitely some deficiency creeping in .. I have read a bit on methylation and b12 on this forum today and god I really don’t know where to begin I think I will just try Taking a break and going even slower in a week 😣
 

Wishful

Senior Member
Messages
3,083
Likes
5,292
Location
Alberta
I think I will just try Taking a break and going even slower in a week
I think that's a good choice. Sometimes you lose track of what you're trying to accomplish and what factors in your life are changing, so it helps to take a break and maybe start fresh.

I've pretty much ignored the methylation stuff. To me it's a bunch of theories that I don't have any confidence that they apply to me. Some people feel better on a complex methylation regime, but is it because it's the theory being correct, or the placebo effect, or some mechanism that is completely unrelated to the theory?

To me, such theories are things that may suggest an experiment that has a better chance of working than something chosen completely at random. If it doesn't make a noticeable improvement, then I add it to the list of 'doesn't work', regardless of how wonderful the theory sounds.

BTW, I never had any good response to B12. I did have one time where it made me severely suicidal.