Aynone else with EDS? And have you found anything that help your symptoms?

[ChookityPop]

I have long suspected connective tissue disease and my neuro just told me I def have it. She said she has many EDS patients with way less severe CTD symptoms than me. I dont satisfy the beighton score but I can dislocate my hip so I showed her.

I have been researching ways to improve since I have been suspecting this for a long time. Ive come accross EDS patients that claims that they have significant improvement from vitamin c injections. I am doing vitamin c IV and it actually helps me. I wonder how high dose I could do without getting side effects... I am doing 2-4 grams a week.

Anyone else doing anything to help their connective tissue? Ive also done bpc157, ghk-cu etc.

I know MCAS is common in EDS and some apparently respond to MCAS medication if I recall correct..

Would love to hear what you guys are doing and if it helps!

hgh? anavar? mcas approach?

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ANECDOTES

I have come across EDS patients that claims they successfully treats their EDS with daily high dose Vit C injections.

My Dose of Ascor for hEDS
https://lessflexible.com/mystory/2018/12/26/wait-i-changed-my-dose-of-ascor

How I Successfully Treat My Ehlers-Danlos Syndrome with Vitamin C Injections