Wayne
Senior Member
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- Ashland, Oregon
I just ran across a remarkable article that I think would be of interest to most people with ME/CFS. In particular those who have symptoms of ANS dysfunction (I think that's just about all of us). In some ways, the account in the article reminded me of @jeff_w's experience, in that the young man realized that if he had any chance at recovery, he'd have to be incredibly proactive and creative in learning how to deal with a doubting medical establishment.
The gist of the story is that a young man of 21 developed a severe case of autonomic system dysfunction. He eventually traced it to a genetic disorder in which his dysfunctional adrenal glands were producing too much adrenaline. His determination to get well forced him to eventually invent a surgery to correct it, but which could only be done by a collaborative effort of somebody within the medical community.
The article is not a short one, but not a long one. If you have the energy to peruse it, I think it would definitely be a worthwhile read. -- I like stories like these! -- @Cort, you might find this interesting, as it might possibly fit in with some of your other well-researched findings. @Hip, I noticed the only search results on PR for "Medullary" were posts made by you.
This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself
By Ryan Prior, CNN
Updated 11:40 AM ET, Sat July 27, 2019
The gist of the story is that a young man of 21 developed a severe case of autonomic system dysfunction. He eventually traced it to a genetic disorder in which his dysfunctional adrenal glands were producing too much adrenaline. His determination to get well forced him to eventually invent a surgery to correct it, but which could only be done by a collaborative effort of somebody within the medical community.
The article is not a short one, but not a long one. If you have the energy to peruse it, I think it would definitely be a worthwhile read. -- I like stories like these! -- @Cort, you might find this interesting, as it might possibly fit in with some of your other well-researched findings. @Hip, I noticed the only search results on PR for "Medullary" were posts made by you.
This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself
By Ryan Prior, CNN
Updated 11:40 AM ET, Sat July 27, 2019
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