heapsreal
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Anyone get there bond uni results?
My NK bright cells were low again which is the marker they are finding low in the cfs patients but what im finding interesting is my NK activity is high when i have been on the antiviral famvir and that bit higher when on famvir and cycloferon,when on nothing my NK activity was very low, this seems to correlate with my lymphocyte sub set tests i had around the same time. My nk bright cells always seem very crappy though.
I hope bond uni follow up this study with something else, maybe some sort of treatment trial or a retroviral test as its a common finding of poor nk function not only in cfs but those who test positive to xmrv/mlv.
I hope they dont leave cfs research in the lurch, especially now the govt are taking money away from medical research. These sorts of studies prove that there is some sort of disease going on other then psychological, we have an immune disorder going on and we need this sort of research to keep going on so we can get better treatment and get our lives back. The risks of not treating this properly are increased risks of cancers, lymphomas, chronic infections etc, the general public need to know that its not something where people are just tired, its a serious illness with serious consequences and there is medication out there now that could possibly help us but we can only get it prescribed off label and its not covered by PBS (pharmacuetical benefits scheme)so costs us a fortune.
Theres been some good aussie research done in the past by universities in adelaide and newcastle but nothing has followed on from them. I even read one rescently from the early 1990s that showed depression in cfs was no higher then the general population but it seems that the average doc thinks its another form of depression. We really need to get this thing sorted, its just not a high profile illness, money floods into breast cancer and other illness that are popular and they do need research dollars but its not evenly spread, maybe because cfs isnt considered real. Its just not dam fair!!!
cheers!!!
My NK bright cells were low again which is the marker they are finding low in the cfs patients but what im finding interesting is my NK activity is high when i have been on the antiviral famvir and that bit higher when on famvir and cycloferon,when on nothing my NK activity was very low, this seems to correlate with my lymphocyte sub set tests i had around the same time. My nk bright cells always seem very crappy though.
I hope bond uni follow up this study with something else, maybe some sort of treatment trial or a retroviral test as its a common finding of poor nk function not only in cfs but those who test positive to xmrv/mlv.
I hope they dont leave cfs research in the lurch, especially now the govt are taking money away from medical research. These sorts of studies prove that there is some sort of disease going on other then psychological, we have an immune disorder going on and we need this sort of research to keep going on so we can get better treatment and get our lives back. The risks of not treating this properly are increased risks of cancers, lymphomas, chronic infections etc, the general public need to know that its not something where people are just tired, its a serious illness with serious consequences and there is medication out there now that could possibly help us but we can only get it prescribed off label and its not covered by PBS (pharmacuetical benefits scheme)so costs us a fortune.
Theres been some good aussie research done in the past by universities in adelaide and newcastle but nothing has followed on from them. I even read one rescently from the early 1990s that showed depression in cfs was no higher then the general population but it seems that the average doc thinks its another form of depression. We really need to get this thing sorted, its just not a high profile illness, money floods into breast cancer and other illness that are popular and they do need research dollars but its not evenly spread, maybe because cfs isnt considered real. Its just not dam fair!!!
cheers!!!