Artists, Creative people

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5
Hi, I have had CFS for years, xmrv + by culture. A few years ago I wrote a song with CFS and other circumstances in mind . I was wondering if anyone wanted to use the song .... change title, and create a video with a CFS theme. You can listen to the song by searching on You Tube .... T Boyd .... the song is called .. For Some .... I have another site where you can download the song. Please contact me if your interested in the idea, as a vehicle for education and advocacy. Thank you.
 
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5
One idea I thought of today ....... change the title to CFS = Extreme Exhaustion and Pain for Years ..... with a slide show of photos of people with CFS, and their former occupations listed below the photo. I think someone did a faces of CFS a while ago. Anyway, the song might be to general or not right etc ....... just an idea. Thanks .... Tom
 

alice1

Senior Member
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457
Location
Toronto
It's really lovely.I wonder if you could link it here.
I love your friend's voice who accompanies you..you're good together.
Don't change the title it works.
Worth listening to everyone.
 
Messages
5
Thanks for checking it out Lou, I hope you, and everyone else out there are doing well. I have had CFS for a long time and have never been involved in advocacy, or education. In fact I do my best not to mention CFS to anyone if I can help it ..... which is unfortunate. I am lucky to have the support of family and friends, even if they don't quite understand the illness. I really appreciate the people that devote their time and what little energy they have, trying to help us all. A diagnosis for CFS got off to a very bad start ( starting with the demeaning name ) with the media, government, and health practitioners. Hopefully that will change soon ..... tom
 
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