• Phoenix Rising needs funds to operate: please consider donating to support PR

Articles on the release of the IOM report

Never Give Up

Collecting improvements, until there's a cure.
Messages
971
Likes
4,005

Snowdrop

Rebel without a biscuit
Messages
2,933
Likes
10,169
Re: Huffpost article

Dr Rowe at one point mentions a study that suggests that identical twins are more often both diagnosed with CFS than a control group of fraternal twins. I wouldn't mind knowing where that study is found for reference.
 

Denise

Senior Member
Messages
1,095
Likes
3,427

Denise

Senior Member
Messages
1,095
Likes
3,427

Snowdrop

Rebel without a biscuit
Messages
2,933
Likes
10,169
I have been slowly rereading articles that came out on the IOM report.

Although I have not got far yet I would definitely suggest that a reporter named Haroon Saddique needs to be educated about what is known about this disease (and about real journalism vs propaganda--but that's a separate issue).

Sadly Mr Saddique writes for the UK news the Guardian. So far the only UK news item I've read. I shutter to think what else is out there in the UK press.

If there are any takers in the UK up to writing to Mr Saddique or anyone else who is clueless I would suggest the above two links from Denise as well as:

Meghan O’Rourke-- February 27, 2015. The New Yorker Magazine.

A new name and wider recognition for Chronic Fatigue Syndrome.


http://www.newyorker.com/tech/elements/chronic-fatigue-syndrome-iom-report


David Tuller--February 10, 2015. The New York Times.

Chronic Fatigue Syndrome gets a new name.


http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=0



Lenny Burnstein--February 10,2015. The Washington Post. To your health blog

Chronic Fatigue Syndrome is a physical disorder not a psychological illness says panel.


http://www.washingtonpost.com/news/...ot-a-psychological-illness-expert-panel-says/



Natasja Sheriff--February 10, 2015. Aljazeera.

Institute of Medicine calls for renaming of chronic fatigue syndrome.


http://america.aljazeera.com/articl...ls-for-renaming-chronic-fatigue-syndrome.html

As well as Charles Shepherds post #3 in the thread BBC covers Hornig/Lipkin research findings.
 

Iquitos

Senior Member
Messages
513
Likes
982
Location
Colorado
(As I said on http://forums.phoenixrising.me/inde...-made-a-few-thousand-new-friends-today.35934/ )
Mistakes such as "ICD-9 code" by a CFSAC member (the blog post author is a CFSAC member) are distressing and do not enhance our credibility.
I doubt the readers of US News & World Report know much about ICD-9 codes.

I like the fact he called for $150 MILLION in research funds. And the rest of his article was very positive for us, enhancing our credibility a great deal in my opinion.
 

Dolphin

Senior Member
Messages
17,555
Likes
28,241
(Not a recommendation)

http://www.talesfromthemadhouse.com/psychiatric-news-the-good-bad-the-ugly-2/

THE UGLY

The shrinks have invented yet another disease! The name of this new addition to psychiatry’s psychobabble is ‘systemic exertion intolerance disease’ (or SEID for short).

http://news.sciencemag.org/health/2...?utm_campaign=email-news-weekly&utm_src=email

Dissatisfied with the existing terms ‘chronic fatigue syndrome’ and ‘myalgic enchephalomyelitus’ (ME) to describe people who suffer prolong periods of unexplained listlessness and inability to concentrate after exertion, experts at the Institute of Medicine (USA) have been working intensively to improve the image of the disorder. The ubiquitous committee was convened – the same process adopted by those DSM people when generating their spurious diagnostic classification systems – and subsequently compiled a 235-page report which they hope will convince the many doubting clinicians that SEID is a real disease. I wouldn’t hold your breath on that one!

I recognise that many people suffer medically unexplained fatigue that can detrimentally impact on their lives. But inventing a new name and calling it a ‘disease’ is unhelpful and will potentially promote further helplessness in those so afflicted.