Articles on the release of the IOM report

[Never Give Up]

This article deals with the IOM report and mentions the Hornig/Lipkin study also.
http://www.newyorker.com/tech/elements/chronic-fatigue-syndrome-iom-report

Grat article! Thank you for posting it.

Will comment more later...currently reading about Maddy Hornig's robust ME/CFS bio marker discovery here:

http://www.mailman.columbia.edu/new...e-chronic-fatigue-syndrome-biological-illness

 

[Kati]

Here dr Rowe is being interviewed. Good article too.

http://www.examiner.com/article/sci...c-fatigue-syndrome-is-real-not-just-your-head

 

[Iquitos]

Here's a good one!

http://health.usnews.com/health-new...the-iom-report-about-chronic-fatigue-syndrome

 

[Denise]

Here's a good one!

http://health.usnews.com/health-new...the-iom-report-about-chronic-fatigue-syndrome

(As I said on http://forums.phoenixrising.me/inde...-made-a-few-thousand-new-friends-today.35934/ )
Mistakes such as "ICD-9 code" by a CFSAC member (the blog post author is a CFSAC member) are distressing and do not enhance our credibility.

 

[Dolphin]

Here dr Rowe is being interviewed. Good article too.

http://www.examiner.com/article/sci...c-fatigue-syndrome-is-real-not-just-your-head

Direct link to video link, for what it's worth: http://on.aol.com/partner/huffpost-live-highlights-517484515/videoId=518647989

 

[Kati]

Myriam Tucker from Medscape has published an article about the Hornig paper. No comments yet

http://www.medscape.com/viewarticle/840706

Edit to add, sorry I think it's not the right thread

 

[Snowdrop]

Re: Huffpost article

Dr Rowe at one point mentions a study that suggests that identical twins are more often both diagnosed with CFS than a control group of fraternal twins. I wouldn't mind knowing where that study is found for reference.

 

[Denise]

Re: Huffpost article

Dr Rowe at one point mentions a study that suggests that identical twins are more often both diagnosed with CFS than a control group of fraternal twins. I wouldn't mind knowing where that study is found for reference.

I believe he was referring to the work of Dedra Buchwald
http://depts.washington.edu/uwccer/data/pdf/pub/059 psychosom med 2001 63 936-943.pdf

 

[Snowdrop]

Thank -you @Denise
I've been trying to compile a few different lists to organise information.
SD

 

[Denise]

The American Academy of Family Physicians posted this today: http://www.aafp.org/news/health-of-the-public/20150302newchronicfatigue.html
and
there is a link within the post to the full Annals of Internal Medicine article by IOM committee member Dr. Ganiats http://annals.org/article.aspx?articleId=2118972&guestAccessKey=2bf318a1-fd3d-4261-8351-509de36a3853
(I believe that previously the article had been behind a paywall)

 

[Snowdrop]

I have been slowly rereading articles that came out on the IOM report.

Although I have not got far yet I would definitely suggest that a reporter named Haroon Saddique needs to be educated about what is known about this disease (and about real journalism vs propaganda--but that's a separate issue).

Sadly Mr Saddique writes for the UK news the Guardian. So far the only UK news item I've read. I shutter to think what else is out there in the UK press.

If there are any takers in the UK up to writing to Mr Saddique or anyone else who is clueless I would suggest the above two links from Denise as well as:

Meghan O’Rourke-- February 27, 2015. The New Yorker Magazine.

A new name and wider recognition for Chronic Fatigue Syndrome.


http://www.newyorker.com/tech/elements/chronic-fatigue-syndrome-iom-report


David Tuller--February 10, 2015. The New York Times.

Chronic Fatigue Syndrome gets a new name.


http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=0



Lenny Burnstein--February 10,2015. The Washington Post. To your health blog

Chronic Fatigue Syndrome is a physical disorder not a psychological illness says panel.


http://www.washingtonpost.com/news/...ot-a-psychological-illness-expert-panel-says/



Natasja Sheriff--February 10, 2015. Aljazeera.

Institute of Medicine calls for renaming of chronic fatigue syndrome.


http://america.aljazeera.com/articl...ls-for-renaming-chronic-fatigue-syndrome.html

As well as Charles Shepherds post #3 in the thread BBC covers Hornig/Lipkin research findings.

 

[Iquitos]

(As I said on http://forums.phoenixrising.me/inde...-made-a-few-thousand-new-friends-today.35934/ )
Mistakes such as "ICD-9 code" by a CFSAC member (the blog post author is a CFSAC member) are distressing and do not enhance our credibility.

I doubt the readers of US News & World Report know much about ICD-9 codes.

I like the fact he called for $150 MILLION in research funds. And the rest of his article was very positive for us, enhancing our credibility a great deal in my opinion.

 

[Dolphin]

(Not a recommendation)

http://www.talesfromthemadhouse.com/psychiatric-news-the-good-bad-the-ugly-2/

THE UGLY

The shrinks have invented yet another disease! The name of this new addition to psychiatry’s psychobabble is ‘systemic exertion intolerance disease’ (or SEID for short).

http://news.sciencemag.org/health/2...?utm_campaign=email-news-weekly&utm_src=email

Dissatisfied with the existing terms ‘chronic fatigue syndrome’ and ‘myalgic enchephalomyelitus’ (ME) to describe people who suffer prolong periods of unexplained listlessness and inability to concentrate after exertion, experts at the Institute of Medicine (USA) have been working intensively to improve the image of the disorder. The ubiquitous committee was convened – the same process adopted by those DSM people when generating their spurious diagnostic classification systems – and subsequently compiled a 235-page report which they hope will convince the many doubting clinicians that SEID is a real disease. I wouldn’t hold your breath on that one!

I recognise that many people suffer medically unexplained fatigue that can detrimentally impact on their lives. But inventing a new name and calling it a ‘disease’ is unhelpful and will potentially promote further helplessness in those so afflicted.

 

[Denise]

My understanding is that Ms. Kelemen spoke with the reporter about far more than what has been included here:
http://www.newsworks.org/index.php/...e-syndrome-gets-new-name-enhanced-recognition

 

[Dolphin]

My understanding is that Ms. Kelemen spoke with the reporter about far more than what has been included here:
http://www.newsworks.org/index.php/...e-syndrome-gets-new-name-enhanced-recognition

The audio has a few extra things not in the written piece.

 

[eafw]

....talesfromthemadhouse .....

The guy has got a book to promote, wouldn't give him the publicity. Claims to be making a "damning critique" of psychiatry but fairly clear from his public drivelings so far that he wouldn't recognise said critique if it jumped up and bit him on the arse.

 

[Tom Kindlon]

https://twitter.com/i/web/status/799130811245219840

https://twitter.com/i/web/status/799436925362966529