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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The Washington Post is also running the "CFS banned from donating blood" article in the health section!
This was very nicely done! who should we thank for doing the ad?
Lancelot... This was a huge team effort. First the Folks at MCWPA: Tina Tidmore, Andrea Pring, Sita Harrison: Marly Silverman, Karen Ravitz.
Second the supporting organizations: P.A.N.D.O.R.A. Inc., Rocky Mountain CFS/ME and FM Association, Vermont CFIDS Association, Inc., Wisconsin ME/CFS Association, Inc. and R.E.S.C.I.N.D.
Third: All the donors that gave which made the effort possible
Last the patient community who took time to comment and select the ad that went into the Post.
It doesn't get much better than that.
Fantastic work everyone. I have forwarded links for the Washington Post add, the PR, Red Cross and AABB news releases to all my local newspapers. I have also contacted our local Blood bank with this information asking what they are doing to preserve the safety of our local blood supply. Their response was immediate and in line with the Red Cross banning us from blood donation....they sounded very concerned (probably don't want me at the front door with pamplets). Awareness is spreading like wildfire now.
Fantastic work everyone. I have forwarded links for the Washington Post add, the PR, Red Cross and AABB news releases to all my local newspapers. I have also contacted our local Blood bank with this information asking what they are doing to preserve the safety of our local blood supply. Their response was immediate and in line with the Red Cross banning us from blood donation....they sounded very concerned (probably don't want me at the front door with pamplets). Awareness is spreading like wildfire now.