can't figure out how to make paragraphs !
Oh Cort, for Pete's sake.... You know who Jos van der Meer and Blijenburg are....
For your information, Van der Meer posted in the Dutch News paper NRC back in October that he didn't have much respect for the WPI study and that he was 'going to repeat the study'. He then already stated it would be bad for the patients if they would all start to believe a virus was involved and then decide not to want to follow their CBT/GET anymore.
Another statement from that article was "Up until now WE have been able to prove beyond doubt that any of the previously noted agents do not cause chronic fatigue" (note, the word "syndrome" is falling off here.)
Another one: "Van der Meer stood at the cradle of the development of CBT and that is the therapy with the best results"
Source: Article NRC Wetenschap October
Educated patients like Guido and myself are not worried about the quality of the research. It sucks. They found what they set out to find, which is nothing. I FULLY second Guido's comment above. I also saw the testimony of that patients Guido refers to. Back in 1991 patients were taken in after filling out a questionnaire, no medical research was done. I am baffled they actually took a blood sample!
In the end, 2 plus 2 equals 4. That's science. 2 plus 1 is NOT 4, well it's maths actually, lol. The point is, as you state as well, that the truth will come out eventually. And as far as the quality of the laboratories go... would you really have preferred REEVES was overseeing XMRV research at the CDC ? The lab might be fine.... but....
What DOES annoy me to the greatest extend ANYTHING has bothered me in a long time, is the press release Jos van der Meer sent out to ALL dutch press agencies and was actually blindly copied and printed in newspapers all over holland. I'll post the translation below. This man speaks as if he is THE authority on ME/CFS in world, press just copy/paste his press release NO press agency is investigating the XMRV issue by any means.
I've personally translated this item and i'm open for improvements on it, but i promise i really did not make it look worse or better than it was. He speaks as if he's the sole expert in the world and provides the general audience (with publications of this message in 15 newspapers that will reach a lot of the 15 million people in our country) with faulty information. Thts a matter of concern. We are fighting so hard to get our illnesses acknowledged and to get governments to CONSIDER funding biomedical research. This is not helping (understatement)
Fatigue Syndrome: Not a virus after all
NIJMEGEN – Chronic Fatigue Syndrome (CFS) is not caused by a virus. Virologist Frank van Kuppeveld and internist Jos van der Meer have not found the so-called XMRV virus in the blood of 32 tested patients.
The Dutch scientists hereby refute the American research published in October 2009 in the famous scientific magazine Science. In this research a connection was published between this virus and Chronic Fatigue Syndrome.
The research from Nijmegen is published on the site of the British Medical Journal today. Jos van der Meer of the UMC st. Radboud in Nijmegen decided to repeat the Science-research because he doubted the value (or validity) of the study.
"Of course it is very difficult for people with Chronic Fatigue Syndrome that we again established that there is no virus involved. I would have liked to give them more certainty about the cause of CFS."
How it can be that the Americans did find the virus and the Nijmegen team did not is not clear. Van Kuppenveld recons the samples used by the Americans were taken from a special group of patients and are not representative of the majority of CFS patients.
Please visit the articles and post a comment:
Or write the UMC st.Radboud directly
Off my soap box now