This is an interview from today with a neurologist and ME-doctor from the hospital Stora Sköndal outside Stockholm in Sweden.
Google translation:
Many see the ME with doubt
Story Sköndal´s neurological rehabilitation clinic in Stockholm is one of few ME clinics in Sweden, and they have a referral stop.
Stora Sköndal neurological rehabilitation clinic, work in teams on ME patients - doctors, occupational therapist, physiotherapist, social worker, psychologist and nurse. One of the doctors is Ulla Lindblom, specialist in neurology. She explains that they received 600 referrals from its inception in June 2015 until December, when they introduced the referral stop. They still have not had time to evaluate everyone.
What treatment, patients with ME (myalgic encephalomyelitis) with you?
- There are no special treatments. Much is symptomatic treatments for example, insomnia and pain. We focus on identifying what patients use their energy. Suddenly, they have a much smaller pouch energy, then it is important to learn to remove unnecessary activity and put their energy on what is important and provides quality of life. Often it means unfortunately rmycket restrictions. But it's so different, some working, others are bedridden 23.5 hours per day.
How does health care on ME patients?
- There are family doctors who are skilled and well-read, but I think that many doctors and others see ME in doubt. They like to think that it is a mental disorder or chronic fatigue syndrome. The disease can affect how you feel physically, but the mental is not the primary.
What needs to be done for these patients?
- Research and information, both directed and wide. Many are badly made of questionable treatment. Primary care must have the opportunity to learn to recognize the disease. It is not realistic that all should come to a specialist. Insurance Agency and the transport service stands also hesitant, they wonder if the disease is found. Many of these patients will perform secured by the Social Insurance Agency.
Yes, the situation is really for ME-patients?
- Many have given up on health care and social insurance office and muddle through and live on their relatives and are invisible in all statistics. I think there are many unreported.
Are you still hopeful?
- Yes absolutely. Much exciting research is ongoing. There is a chance that we can understand the disease better and in the best of worlds find treatment. I am glad a large study in Norway, where they examine the anti-inflammatory medicine Rituximab is that lower levels of certain white blood cells. In previous, smaller studies have shown good results.
Google translation:
Many see the ME with doubt
Story Sköndal´s neurological rehabilitation clinic in Stockholm is one of few ME clinics in Sweden, and they have a referral stop.
Stora Sköndal neurological rehabilitation clinic, work in teams on ME patients - doctors, occupational therapist, physiotherapist, social worker, psychologist and nurse. One of the doctors is Ulla Lindblom, specialist in neurology. She explains that they received 600 referrals from its inception in June 2015 until December, when they introduced the referral stop. They still have not had time to evaluate everyone.
What treatment, patients with ME (myalgic encephalomyelitis) with you?
- There are no special treatments. Much is symptomatic treatments for example, insomnia and pain. We focus on identifying what patients use their energy. Suddenly, they have a much smaller pouch energy, then it is important to learn to remove unnecessary activity and put their energy on what is important and provides quality of life. Often it means unfortunately rmycket restrictions. But it's so different, some working, others are bedridden 23.5 hours per day.
How does health care on ME patients?
- There are family doctors who are skilled and well-read, but I think that many doctors and others see ME in doubt. They like to think that it is a mental disorder or chronic fatigue syndrome. The disease can affect how you feel physically, but the mental is not the primary.
What needs to be done for these patients?
- Research and information, both directed and wide. Many are badly made of questionable treatment. Primary care must have the opportunity to learn to recognize the disease. It is not realistic that all should come to a specialist. Insurance Agency and the transport service stands also hesitant, they wonder if the disease is found. Many of these patients will perform secured by the Social Insurance Agency.
Yes, the situation is really for ME-patients?
- Many have given up on health care and social insurance office and muddle through and live on their relatives and are invisible in all statistics. I think there are many unreported.
Are you still hopeful?
- Yes absolutely. Much exciting research is ongoing. There is a chance that we can understand the disease better and in the best of worlds find treatment. I am glad a large study in Norway, where they examine the anti-inflammatory medicine Rituximab is that lower levels of certain white blood cells. In previous, smaller studies have shown good results.
