Here's my info:
Type of onset
Bad bout of 'flu
Age at onset
26
Degree of debility at its worst (how sick were you?)
4.5 out of 5 at worst, with some periods of several years with few symptoms
Length of illness
30 years
Effective treatments
b12/folate one a day for many years, then discovered high dose methylcobalamin (started 2009, via Freddd on the WrongDiagnosis forum on B12) after a crisis in 2008, Nutri Thryoid/Adrenal (started 2010 after getting thyroid/adrenal tests and finding adrenal exhaustion and problem with T4/T3 conversion). Currently started on T3 after reading 'Recovering with T3' by Paul Robinson.
Degree of Recovery
Varies between 90% at best to around 50%. The digestive problems - incl IBS, acid reflux, constipation - are much improved but the tiredness and neurological probs (neuropathy, memory loss, brain fog) although improved are still very much around.
Comments/Advice for others
The worst thing after having the condition is to have medics and even family/friends not believe you - having support is a lifeline. The best support is people looking together for answers and ways to make some progress, as on this forum.