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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hi Jenny
That's great news. I have heard excellent reports from a number of people (medical included) about how highly regarded Jean Munro is as well as the neutralization provocation therapy.
I understand something similar ( but not the same) is offered in the USA. I read the other thread and the other persons outcome, but am uncertain where they were being treated.
I hope you can provide us with an update in a few months time.
I am hoping to be tested here in Australia soon. I also understand that the antigens can be taken by way of drops 3x a day.
ISO
I also know a person severely affected with MCS and food allergies - to such an extent that she could not live in a normal house/work in an office, wear normal clothes etc and could not travel very far. She could only eat 5 foods without a reaction and had even become allergic to water. Anaphylactic shock was a constant issue. Her skin was a weaping mess. She also sought this treatment at Breakspear in the UK and the turn around in her life and health has to be seen to be believed.
I think elimination diet is the only way to go. Dr. Dantinii believes that the other food allergy tests don't work and his does, as well - so there doesn't appear to be any consensus. Maybe your post will save some others from spending money they could have saved.