You can view the page at http://www.forums.aboutmecfs.org/content.php?123-FINE
I think it all comes down to the unwillingness of viruses to go along with behavioral therapy. Independent little buggers.
More seriously, this study could be used as ammunition to head off the CDC's planned version of the PACE trials. Perhaps that might come out in the May CFSAC meeting. It will interesting to see what Dr. Unger has to say.
I know what you are saying but i cant believe that our UK government doesn't know that there is a real disease process going on. Its far easier to turn a blind eye and let the blinkered Psychiatrists cover this up. Hopefully the latest PACE trial will flounder. But going on there efforts the last 20 yrs i believe we will be put through there CBT grinding stone before there done. I think only then when thousands of individuals are made severely worse will the real disease process be taken seriously. The more they push there psychiatric views eventually they will trip up when their statistic's fail to accomplish.I am astounded at how the UK Government Department of Health has been continually duped by Psychiatrists to commit vast sums of taxpayer money into useless psychiatric research into what is in fact the biomedic illness ME/CFS. How can we rid our community of this pestilence?
I think it all comes down to the unwillingness of viruses to go along with behavioral therapy. Independent little buggers.![]()
More seriously, this study could be used as ammunition to head off the CDC's planned version of the PACE trials. Perhaps that might come out in the May CFSAC meeting. It will interesting to see what Dr. Unger has to say.
Cure_ME;76543]I am astounded at how the UK Government Department of Health has been continually duped by Psychiatrists to commit vast sums of taxpayer money into useless psychiatric research into what is in fact the biomedic illness ME/CFS. How can we rid our community of this pestilence?
I read in a link on this forum that the Lib Dems are promising to fund biomedical research into ME. That gets my vote on Thursday at the General Election. Any one else?
I read in a link on this forum that the Lib Dems are promising to fund biomedical research into ME. That gets my vote on Thursday at the General Election. Any one else?
I have already posted my vote for LibDems. Unfortunately, due to the inequality of the First Past The Post electoral system, my vote is unlikely to count as I live in a strong Tory constituency. I look forward to electoral reform though.
No offence to any fellow Brits on here who vote Tory, but please accept my my condolences Cure.
Where I live they don't bother with a count as such. Not entirely true, as in fact they do tot up the number of wheelbarrows of ballot papers the Labour candidate received. And just put the rest in a bijou shopping bag. :innocent1:
With respect to your political views Adam lets not forget that Labour's record is far from Rosy. I don't want to drag this into party politics, but I claim the right to reply and it is relevant to the subject under discussion.
Until very recently, the Guardian newspaper was a Labour Party organ, reputed to have close links with the Wesselyites and the only national daily in the UK not to have published a story on the original WPI Science paper (it did of course publish stories on the European 'rebuttals'). It was also the paper that hosted the good old Dr Crippen blog.
It was the Labour party who commissioned the economist and Labour life peer Lord Layard to produce the report which set out the cost/benefits rationale underpinning the FINE/PACE trials.
It was a Labour minister who approved DWP funding for the FINE/PACE trials (as the only clinical trial ever funded by DWP, the decision to do so must have been made at ministerial level, believe me).
It is the Labour party who have replaced Incapacity Benefit with the Employment Support Allowance (ESA) with the publicly stated intention of cutting the number of recipients. ME/CFS has been specifically targeted for attention. In doing so, they are now using a private sector firm to assess recipients for their ability to work with payment for results being based on declaring the patient fit for work and nothing else. The patients own GP's comments are now not considered relevant.
I'm not aware that the Conservatives (Tories) have said anything specifically on ME, I suspect not. However, during the present campaign, David Cameron has stated that the ESA system of bonus payments merely for declaring people fit for work is iniquitous and, if in power, the Conservatives would ensure that bonus payments are only made once ESA recipients are considered capable of working, placed in a job and able to sustain that employment. I'm sure many would agree that this is a much fairer system vis a vis those with fluctuating illnesses!
The rationale for voting for any particular party, with sole regard to the interests of us PWC's, is therefore not clear at all. From my perspective, if I was able to vote in the UK general election, the current Labour party is not the Labour party of old and I would ensure that my vote neither directly nor indirectly kept them in power.