Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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There 5,000 papers published on CFS - that # even includes comments on papers. Very, very few of them focus on pathophysiology and biology; maybe 20 or so out of the hundreds of 'papers' on CFS that will be published this year will try to explain it in biological terms. There is VERY LITTLE study of the type we want taking place.[FONT="]Patients pointedly asked why has this illness been ignored for 2+ decades. When Gottesman said it was due to a lack of concrete scientific, clinical and medical findings and published papers, patients countered that there are 5000 scientific and medical studies on CFS already published.[/FONT]
The response, I think, should be why is so little study being done on 1,000,000 sick people that cause the economy 20 billions a year in economic losses. Why is CFS spending at the NIH nearly dead last?it was due to a lack of concrete scientific, clinical and medical findings and published papers,
When Gottesman said it was due to a lack of concrete scientific, clinical and medical findings and published papers, patients countered that there are 5000 scientific and medical studies on CFS already published.