Jody- I am fairly new to this forum but have been ill for 6 years...
I have never been able to describe to friends, family, doctors, co-workers what the fatigue feels like to me. It is so difficult unless you have actually lived through it.
I am printing your article and giving it to all those people who think I am just "tired" all the time. I know my doctor tries to understand but when 80 percent of his patients complain of fatigue then you just get thrown in with the rest of them.
I wish I could have put into words what you just did and I hope that when people read this they might understand it a little better...Thank you so much.
This piece of writing has put all my feelings into words -it is fantastic. "Tired is a sweet curled-up kitten by the fireplace. CFS "fatigue" is a juggernaut dragging me in a free-fall through empty space, while everything I love goes to smash."- how I love that description. People think I am tired and compare it to how they feel after a long walk or an afternoon gardening. How I would love to feel like that. I have three persian cats who curl up all day on the sofa totally at peace with themselves. The sicker I get the more adrenaline races through me and I am wired. My dreams are vivid and in colour- that's if I get to sleep at all as most nights there is insomnia, night sweats, racing heart and all manner of wierd muscle twitching that goes on. I wish people could see how sick we are instead of thinking we are simple tired - if only!
I almost didn't put in that bit about the kitten and the juggernaut. Almost didn't write it down and then later almost edited it out. I guess I just thought I was stating the obvious.
Actually the whole article almost never got posted, for that reason. But I guess, just because this is all so depressingly obvious to us doesn't mean it is to those around us. And I guess that is really the point.
This is what seems to get lost in the space between our reality and theirs. And we need to keep saying it until we hit on the thing that will make it clear for them.
Okay. I'll just keep repeating myself in as many different ways as I can. My family will assure you that I excel at this.:Retro tongue: