my life has become semi-livable on azt. i am still really sick but not suicidally so.
dr. lombardi estimates 2 yrs before better drugs come out.
i wish to God there was some other way but looks like lifelong antiretrovirals will be our future.
a little part of me is clinging to hope that they might find something about this virus that makes it somehow very weak and able to be eradicated...but i know that doesnt happen with retroviruses.
The wonders of modern chemistry have proven to be disastrous for me. My wish is that they make a powerful anti-viral from plants.
I'm in no hurry to start anything right now. I want to wait for more information. And then I would want to carefully find a doctor who has experience with antiretrovirals AND ME/CFS to monitor me. This does not look like an easy path ahead.
Dreambirdie, I too have found the cure to be worse than the disease, pharmaceuticals giving me more problems than they solve. I'm using Cats Claw - I started recently, and I noticed a reduction in neural symptoms almost immediately - and I'm still on my garlic, mostly using Allicinmax. These two are both natural antivirals. Garlic is anti-fungal and anti-bacterial too. They both have a short action, so must be taken continually, in my experience.
I also use redbush tea, with a slice of ginger root sometimes, mint sometimes, liquorice sometimes, every day. All those things have a medicinal action - redbush (roibos) is anti-oxidant, liquorice has helped my sleeping patterns, ginger is anti-nausea, mint too, and all these things taste nice, unlike the bitter white pills that I found so hard to swallow.