I remember a few years ago it was suggested here it sounded like I had pots but I didnt want to even consider it as fInting is a huge phobia of mine.
Anyway 2 Novembers ago I started struggling with very bad anxiety and panic attacks. 12 hour panic attacks it was awful. One evening my father in law had a heart attack and my husband had to leave me, of course, and I suffered a severe panic attack when on my own. A few hours later once I felt up to walking my feet went all hot, red blotches and burning feeling just across the toes and on the top of the foot about 1/4 of the way up. Odd but I assumed it was due to inactivity that night. Since then it's happened every single night for 2 years, some nights less than others but this year its definitely not been as bad as last year, the redness and heat is milder than back then. My gp had no clue what it could be but it sounded like a rare condition called erithyromyalgia.
Last year after months of bad anxiety, flu and tonsilitis within a few months of eachother I became very fatigued and hit a major crash. I was bed ridden for 9 months with bad fatigue, and with it the anxiety was still pretty bad.
This year I've made progress with my mental health but physically I've still struggled with my physical side but its definitely improved. Last year I could barely walk around and didnt go downstairs for months at one point, hubby had to bed bath me. Now I can go downstairs but every time I do, within 5 minutes I feel it. One symptom I've had since last year is i get very breathless at times on activity. My gp isnt concerned and puts it down to the cfs. It's better this year than last but here's an example.
I was downstairs today doing our tree, I've been decorating it since last week. I am doing 5 minute trips downstairs and resting on my bed in between. I have to do the same to make my lunch. Put lunch on, go rest for half an hour to recover then go dish up. Constant pacing to avoid crashes or these weird symptoms when active. Today after 5 minutes i got my usual symptoms. My heart rate went up, head feeling all swimmy so I immediately panic I will faint, my lower legs and feet feel (this is hard to explain but they feel tight and like I cant stand up anymore or have to move them) but like they're tight or stiff and I feel the need to grip my toes into the ground to stay upright and sometimes my feet flare and feel warm, sometimes even blotchy. Usually my foot symptoms are mostly in the evenings once under warm bedding but sometimes they flare on activity during the daytime. I panicked and ran upstairs to my bedroom, lay down and heart rate was 100. BP was fine, it always rises once I've been on my feet. It was I think 128/82 today I had a similar attack last week doing the tree and my heart was 115 and it took a while to return to normal that day.
Today the BP came down quickly once resting but it was 98/58 after 5 minutes and for me thats a little low. My normal bp is about 107-111/68 ish. I get really out of puff too after being on my feet for more than 5 minutes and once resting that calms down as long as I dont get afraid of it and then it's fine again. I never get breathless when resting or doing say 2 -5 minutes on my feet but once 5 or over it'll kick in, I feel warm and then those symptoms above begin. It just feels like a complete inability to be upright for more than 5 minutes and i never had this before with cfs. I cant even sit upright on a chair for more than 2 minutes. I feel I have to lie down propped up again.
After Googlling I see it sounds like POTS so I'm wondering does it affect any of you with the symptoms I have? It hits me every time I'm active around the house and if I walk about or do chores too much (never anything strenuous) I can feel like I'm crashing by 5pm. I truly feel though that these daily symptoms when walking around are ruling my life and I had cfs for a year before this all began and never had these symptoms. I'd feel weak after going out or after doing too much at home but none of the burning feet, feeling shimmy and like my legs are tightening, breathless and I feel I need to lie down quick.
I'm sorry this is so long. I'm complex l know lol.
Thank you
Jem
Anyway 2 Novembers ago I started struggling with very bad anxiety and panic attacks. 12 hour panic attacks it was awful. One evening my father in law had a heart attack and my husband had to leave me, of course, and I suffered a severe panic attack when on my own. A few hours later once I felt up to walking my feet went all hot, red blotches and burning feeling just across the toes and on the top of the foot about 1/4 of the way up. Odd but I assumed it was due to inactivity that night. Since then it's happened every single night for 2 years, some nights less than others but this year its definitely not been as bad as last year, the redness and heat is milder than back then. My gp had no clue what it could be but it sounded like a rare condition called erithyromyalgia.
Last year after months of bad anxiety, flu and tonsilitis within a few months of eachother I became very fatigued and hit a major crash. I was bed ridden for 9 months with bad fatigue, and with it the anxiety was still pretty bad.
This year I've made progress with my mental health but physically I've still struggled with my physical side but its definitely improved. Last year I could barely walk around and didnt go downstairs for months at one point, hubby had to bed bath me. Now I can go downstairs but every time I do, within 5 minutes I feel it. One symptom I've had since last year is i get very breathless at times on activity. My gp isnt concerned and puts it down to the cfs. It's better this year than last but here's an example.
I was downstairs today doing our tree, I've been decorating it since last week. I am doing 5 minute trips downstairs and resting on my bed in between. I have to do the same to make my lunch. Put lunch on, go rest for half an hour to recover then go dish up. Constant pacing to avoid crashes or these weird symptoms when active. Today after 5 minutes i got my usual symptoms. My heart rate went up, head feeling all swimmy so I immediately panic I will faint, my lower legs and feet feel (this is hard to explain but they feel tight and like I cant stand up anymore or have to move them) but like they're tight or stiff and I feel the need to grip my toes into the ground to stay upright and sometimes my feet flare and feel warm, sometimes even blotchy. Usually my foot symptoms are mostly in the evenings once under warm bedding but sometimes they flare on activity during the daytime. I panicked and ran upstairs to my bedroom, lay down and heart rate was 100. BP was fine, it always rises once I've been on my feet. It was I think 128/82 today I had a similar attack last week doing the tree and my heart was 115 and it took a while to return to normal that day.
Today the BP came down quickly once resting but it was 98/58 after 5 minutes and for me thats a little low. My normal bp is about 107-111/68 ish. I get really out of puff too after being on my feet for more than 5 minutes and once resting that calms down as long as I dont get afraid of it and then it's fine again. I never get breathless when resting or doing say 2 -5 minutes on my feet but once 5 or over it'll kick in, I feel warm and then those symptoms above begin. It just feels like a complete inability to be upright for more than 5 minutes and i never had this before with cfs. I cant even sit upright on a chair for more than 2 minutes. I feel I have to lie down propped up again.
After Googlling I see it sounds like POTS so I'm wondering does it affect any of you with the symptoms I have? It hits me every time I'm active around the house and if I walk about or do chores too much (never anything strenuous) I can feel like I'm crashing by 5pm. I truly feel though that these daily symptoms when walking around are ruling my life and I had cfs for a year before this all began and never had these symptoms. I'd feel weak after going out or after doing too much at home but none of the burning feet, feeling shimmy and like my legs are tightening, breathless and I feel I need to lie down quick.
I'm sorry this is so long. I'm complex l know lol.
Thank you
Jem
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