Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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They still don't know what caused them. Yesterday they were getting ready to send her home because she's much better, but then they discovered that both of her shoulders are broken from when she had the two toniclonic seizures, and she's havin surgery today. The small-town hospital she went to first completely missed that, and so did the big-town research hospital she's in now, for five days! Needless to say, a lot of us are having flames coming out of our ears at the moment.
My wife told me I had "seizures" again during the night but I have no recollection. I asked her to imitate them. It looks more like large involuntary movements mostly in the legs (greater amplitude than shivering). She said she is unable to imitate the movements with the same sharpness. She said my legs were very cold at the time. My guess would be weak heart mitochondria causing bad circulation and the body trying to "kickstart" circulation to the legs.fla, what do your seizures during sleep consist of, if you don't mind saying? I've been told I do some pretty extreme muscle twitching in my sleep, but I don't know if these are actually 'seizures'. I'm taking methyl B12 and experience twitching at rest on this supplement, though nothing I would call a 'seizure'.