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Anyone with OI who doesn't get lightheaded/dizzy?

Jwarrior77

Jwarrior77

Senior Member
Messages
119
I have POTS and CFS however when I stand up I really don't get lightheaded or dizzy. I do have trouble breathing, tachycardia, fatigue, and a strong want to lay down which I then do. But I was just wondering if there is anyone out there that doesn't experience light-headedness. Thanks.
 
Sushi

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
Jwarrior77 said:
I have POTS and CFS however when I stand up I really don't get lightheaded or dizzy. I do have trouble breathing, tachycardia, fatigue, and a strong want to lay down which I then do. But I was just wondering if there is anyone out there that doesn't experience light-headedness. Thanks.
Click to expand...
I have OI as confirmed by an autonomic specialist and while my blood pressure starts to drop within a minute after standing I don’t feel lightheaded and close to fainting until I have been standing much longer. How long that takes varies from day today.
 
Learner1

Learner1

Senior Member
Messages
6,305
Location
Pacific Northwest
I thought being dizzy on standing was part of the definition of OI, though I will say mine has gotten better with treatment. I can dig in the garden without getting dizzy or blacking out finally.
 
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