Rlman
Senior Member
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- Toronto, Canada
anyone been to those places to investigate cfs?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The Mayo Clinic still officially endorses CBT/GET for treatment. Its not a great first choice for ME or CFS no matter that it might be for other conditions.
Mayo clinic will not help you. They are still very traditional, conventional wisdom medicine. They are the best if you have textbook, established diseases, even rare ones. But ME/CFS, no.
souce: know two people who have gone there for CFS and lyme, respectively. relatives are on staff there. parent worked there.
Thanks for sharing your experience @-Jessie- . Sorry to hear it was not helpful for you.
Do you know for what conditions Mayo is first choice for?
Hey @junkcrap50 - I noticed Mark Hyman heads up the functional medical clinic at Cleveland Clinic. He claims to have cured his own medical issues with Lyme and/or CFS. Sounds a bit too good to be true to me, and he's looks like one of those "famous" functional doctors that are more brand than medicine. But curious to find out what your CC contacts think of him...?