Meg I am sorry too of course
I came to this thread because someone came to the other thread that is about oxygen hunger and told us to come here because they thought it was same issue, its all related even though we have a continuum of some of us are constantly in bed and others can be up for awhile during the day some longer than others. I certainly hope tanna your last sentence was not an attempt to apologize for my post???? I can speak for myself. This 'oxygen hunger" I have may not have me on oxygen 24-7 but it is certainly more than a minor inconvenience, I feel it has been the tragedy of my life and to me its huge. Why compare? Its all relative, there is always someone in a worse or better situation. My situation prompted me to drop 10k on Dr Cheney I was so desperate and I am not a wealthy person and don't have some rich huz to support me.
Anyway, I think Cheney is on to something and that it very well could relate to your situation Meg so beware in case what you are doing is contraindicated, have you felt better on o2, the same, or worse?
Also tonight when I tested myself when I was standing up with a pulse oximeter it said it was at 86, goes to 98 when I am rested and sitting still, I am going to tell my doc about it.
Also if you guys go to Dr Bells latest news letter he refers to the work Cheney has been doing around this w/echocardiograms, I had one of those with him.
I think the million dollar question is if the oxygen problems CFS folks have and the heart issues blood pressure issues etc is it because of too much or too little oxygen. that is the question no one seems 100% on. A regular cardio guy is clueless, that is what I am trying to tell you. even the mayo link I provided is lame. Here is the other thread here about it expounding on what I said, other ideas what to do:
http://www.forums.aboutmecfs.org/showthread.php?3147-Decreased-oxygen-saturation-upon-exertion
cheney said hyberbaric oxygen chamber is contraindicated in me and other cfsers. He admits its a tricky call. I did feel worse when he administerd an o2 mask as part of the test with his echo its part of his test and it shows most of us look worse on the echo when he gives o2, but no one else is looking at it the way he is, he has an excellent echo tech helping him.