Gingergrrl
Senior Member
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Also, @Wonkmonk might possibly know of doctors in Germany and I'm tagging him just in case...
I know Dr. Schiebenbogen did a study with IVIG and immunoadsorption but I don't think she did one with Rituximab (but I might be wrong).
Also, @Wonkmonk might possibly know of doctors in Germany and I'm tagging him just in case...
I can confirm that. For all Europe patients it's only KDM who has extensive experience with this disease..If you are in Germany, you must see KDM in Brussels! That is the best choice, by far!!
Well there are benefits.@NotThisGuy I don't know any personally.... But this doc from Munich: I had an appointment with him. But at the appointed time he wasn't available. I wrote him in Email but he never answered. So I would not recommend him due to his unreliability. But why do you want to get this diagnoses... there is no benefit until there is a treatment!
@Joh Moin
No he is a friend of mine and he never said he gives the money for Charite.We dont know, on a youtube clip he says that he wanna donate the money to the charite in berlin that they can do another study which could help also other patients. I think he doesnt takes the money for himself. As Ive read he gets some payments from an insurance which he made for his career as a professional soccer player. He told its enough for livining and paying some treatments IV, Vitamins etc.
I never said I got better on Copaxone. I didn't. I only tried it. Prescribed by my GP. Who prescribes a dozen of things off label and never got “banned” by insurance. If he did it on a “Kassenrezept”, then this might be different.Well there are benefits.
With assurance doctors you dont get any prescription for Antivirals, Immunemodulators, any off-label treatment will be banned from the krankenkasse /assurance. At least here, in Germany.
You wrote in your instagram that you got better with Copaxone wich its an offlabel drug used for MS
Who prescribed your this drug?
Dr Neidert...i cant recomend. He doesnt know much about cfs and wants to win money with ozone and supplements wich you can buy yourself on internet....
Would you mind messaging me or posting the name of a doctor in Bavaria who specialises in chronic viruses?Still looking for someone in Bavaria who focuses on ME and not on viruses or Lyme only.
For Lyme and viral infections, I can recommend two doctors if you send me a PM.
It seems like no one is willing to properly diagnose in accordance with the guidelines and prescribe off-label treatments.