Maybe sometimes we miss that obvious distinction, between activity level and stamina. Some people who get CFS may think of how active they were before, and not recognize that their stamina had been declining faster than their activity level would suggest.
For about 3 years prior to CFS the diminishing endurance became more noticeable. For example, I could not swim as many laps, which I thought was just due to de-conditioning, but in retrospect, it was something else.
I am in partial remission now due to the combination of mold avoidance, methylation support (both Fred and Rich's protocols, combined) and a consistent and fairly complicated rehydration therapy (treating OI and low blood volume). Also regular use of natural antimicrobials. And a lot of deep-level stress-reduction. The partial remission has improved my stamina, particularly the rehydration therapy, which seems to reduce PEM. I have tried dozens of treatments and this is the only time my stamina has improved, but only by a little, maybe 10-20% on good days.
Kurt, That's a really good point about stamina. Maybe mine was worse than I realize. I know I always seemed to need a lot of sleep more than the average person and did have health issues from a young age and that if I went without sleep I'd get sick right away, especially if I was also traveling. Do you mind if I ask what your rehydration therapy consists of as well as the natural antimicrobials? It's good to hear you've had some improvement.