panckage
Senior Member
- Messages
- 777
- Location
- Vancouver, BC
As the title says:
Anyone else find exertion not related to crashes?
My crashes (hours, days, weeks or longer) seem unrelated to physical activity. They appear to be completely random. Pacing does not seem to help me whatsoever.
Random facts about me:
-when I'm bad I have trouble standing or sitting so I just lie down a lot. I have headaches, brain fog, fibro, fatigue. All the usual symptoms, like a zombie
- unmedicated if I do try to exercise my heart maybe goes up to 110bps or so but it makes me feel feint so after 5-10min so I just give up and stop. I feel like a car stuck in first gear... This exercise has no effect on my subsequent symptoms
-Usually I can exercise If i take ritalin and/or marijuana and/or opiods (always low doses for marijuana and opiods). When I take these my heart goes up to relatively normal range when I exercise (average ~130bps or so. More than 140bps average or so does seem to be a problem though). It feels good. After exercise I might feel a little better or a little worse. Usually though I just feel the same as before the exercise
-I do notice sometimes I can exercise myself out of a crash sometimes if I regularly take my medicine and regularly exercise for a few days
- Going on a CFS/ME reading binge recently I've tried to vilify pushing myself physically and try to pace myself... but really "listening to my body" and slowing down only increased my symptoms in my case. I understand pacing helps many of you. I have no argument with that. What I'm trying to find out is why my case seems to be so different.
Anyone else find exertion not related to crashes?
My crashes (hours, days, weeks or longer) seem unrelated to physical activity. They appear to be completely random. Pacing does not seem to help me whatsoever.
Random facts about me:
-when I'm bad I have trouble standing or sitting so I just lie down a lot. I have headaches, brain fog, fibro, fatigue. All the usual symptoms, like a zombie
- unmedicated if I do try to exercise my heart maybe goes up to 110bps or so but it makes me feel feint so after 5-10min so I just give up and stop. I feel like a car stuck in first gear... This exercise has no effect on my subsequent symptoms
-Usually I can exercise If i take ritalin and/or marijuana and/or opiods (always low doses for marijuana and opiods). When I take these my heart goes up to relatively normal range when I exercise (average ~130bps or so. More than 140bps average or so does seem to be a problem though). It feels good. After exercise I might feel a little better or a little worse. Usually though I just feel the same as before the exercise
-I do notice sometimes I can exercise myself out of a crash sometimes if I regularly take my medicine and regularly exercise for a few days
- Going on a CFS/ME reading binge recently I've tried to vilify pushing myself physically and try to pace myself... but really "listening to my body" and slowing down only increased my symptoms in my case. I understand pacing helps many of you. I have no argument with that. What I'm trying to find out is why my case seems to be so different.