Anyone else experience dysphagia (swallowing issues)?

[ChookityPop]

I had this really bad in May but it has been better lately. It was so bad that I had to put my food in a blender to be able to get it down. Now I have enjoyed eating solid foods again. Wonder if anyone else are experiencing this?

 

[L'engle]

I've had this for swallowing supplements and at times when my thyroid is enlarged.

Does your throat have a 'full' feeling or is it just the swallowing reflex? Might be worth seeing if the front of your neck feels different than usual when this is happening. Normally I have a hollow in the front of my neck but when my thyroid is triggered it fills in the hollow, while not actually sticking out noticeably.

Just an idea.

 

[ChookityPop]

I've had this for swallowing supplements and at times when my thyroid is enlarged.

Does your throat have a 'full' feeling or is it just the swallowing reflex? Might be worth seeing if the front of your neck feels different than usual when this is happening. Normally I have a hollow in the front of my neck but when my thyroid is triggered it fills in the hollow, while not actually sticking out noticeably.

Just an idea.

Thanks for chiming in. My issues are caused by muscle weakness. If I use any muscle too much it will get strained and that will increase my symptomburden and sometimes PEM if its bad enough.
I am right now being investigated for Polymyositis or potentially Inclusion Body Myositis (IBM).

The thing is tho, I dont have much inflammation on my MRIs so I fear I will get ignored again but lets see what happens.
I have tested positive for CN1a which is seen in IBM (and 4% of Polymyositis patients, sjogrens, LUPUS too etc), muscle biopsy results shows moderate myopathic changes, myositis like weakness and symptoms (dysphagia, finger weakness, full body weakness, eyes, jaw etc..)

I have found other people like me with ME/CFS diagnosis also. It seems like a myositis like disease which are not identified on MRIs, EMG, NCS etc... I wonder why when the symptoms are so severe. In many aspects I am way worse than myositis patients that has been in the game for decades.. Super weird

 

[Eastman]

There was a discussion on this topic here. As I mentioned on that thread, I personally know someone whose swallowing difficulty resolved after taking magnesium for some other problem.

 

[ChookityPop]

There was a discussion on this topic here. As I mentioned on that thread, I personally know someone whose swallowing difficulty resolved after taking magnesium for some other problem.

Thanks for sharing, will have a look.
I do take magnesium.

 

[Blazer95]

I have this Symptom and i cant swallow anything anymore. I Choke on my Citalopram until i gulp it down in a very weird manner

 

[Violeta]

@Manuel has some information here, but this message on Twitter ( now X) was easier to find. And if you scroll up, you will see Eric Topol's message, which has more information about it.

To find this message, I did a search for lupus, and I see it mentions Sjogrens, not specifically for swallowing.

https://x.com/manruipa/status/1622974865388052482

 

[Violeta]

@Manuel has some information here, but this message on Twitter ( now X) was easier to find. And if you scroll up, you will see Eric Topol's message, which has more information about it.

To find this message, I did a search for lupus, and I see it mentions Sjogrens, not specifically for swallowing.

https://x.com/manruipa/status/1622974865388052482

Here's a paper by Manuel.

CD4+ Cytotoxic T Cells Involved in the Development of EBV-Associated Diseases​

https://www.mdpi.com/2076-0817/11/8/831

​

And then here's a paper by several other authors that shows T cells in myositis.

T cells in myositis​

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3674618/#:~:text=The presence of CD4+ T,an autoimmune reaction [1].


And then here's a paper about CD4 t cells involvement in myasthenia gravis, a disease that very definitely affects the muscles involved in swallowing.

Autoreactive T Cells from Patients with Myasthenia Gravis Are Characterized by Elevated IL-17, IFN-γ, and GM-CSF and Diminished IL-10 Production​

https://journals.aai.org/jimmunol/a...eactive-T-Cells-from-Patients-with-Myasthenia

MG is an autoimmune disease involving T cells, in which CD4+T cells play an important central role(Conti-Fine et al., 2008; Cebi et al., 2020; Jin et al., 2021). Individuals become susceptible to the disease when CD4+T cells function was imbalanced.