I have been dealing with what I think and have been told is me/CFS for about six years.
At the beginning of my illness I did have a lot of tiredness but over the years this has faded. Recently it almost feels like I have too much energy and have to restrain myself because if I do anything remotely strenuous, even concentrating for 30 minutes, I will get PEM. My PEM doesn't involve feeling tired either unless it is really severe, I just get swollen glands, sore throats, headaches, and muscle aches. I am seeing a chronic fatigue specialist but they just don't seem to understand that I seem to have this illness but not the tiredness in the name.
I'm just wondering if anyone else is the same way or if I am just crazy or have the wrong diagnosis?
At the beginning of my illness I did have a lot of tiredness but over the years this has faded. Recently it almost feels like I have too much energy and have to restrain myself because if I do anything remotely strenuous, even concentrating for 30 minutes, I will get PEM. My PEM doesn't involve feeling tired either unless it is really severe, I just get swollen glands, sore throats, headaches, and muscle aches. I am seeing a chronic fatigue specialist but they just don't seem to understand that I seem to have this illness but not the tiredness in the name.
I'm just wondering if anyone else is the same way or if I am just crazy or have the wrong diagnosis?