Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Did it work for you? Did it help? It sounds to me like a whole lot of BS. But my naturopath has seen results with it.I bought mine from the company. It was priced very well with 12 month return guarantee. I love mine and don't want to part but it would be hard to resell because there is a short workbook.
Here is where I purchased:
https://retrainingthebrain.com/
When I do it YES it absolutely helps.
No amount of supplements can strengthen our immune systems...trust me I've tried lol!!
You are taught strategies that help your mind to feel better and remind you of what good things feel like, since the pain and symptoms have kept us in a state of hypervigilance.
There is much evidence that the limbic system can calm and yes POTS can decrease/go away in some people using these type of strategies.
if immune boosting supplements were the 'cure' for this, the word would be out, a lot of us have found otherwise
yes. absolutely.Sure, not criticizing positive thinking techniques per se, but pointing out that there is a difference between positive thinking, and the actual objective improvement of symptoms.
Perhaps all of us with ME/CFS could benefit from some psychological techniques that aim to brighten our lives, supply hope, or give us more optimism.
In fact I think this is one of the reasons that ME/CFS patients generally follow all the ME/CFS research very closely, as we are looking for reasons to be hopeful and optimistic.
Myself, whenever I am planning to try a drug or supplement that I read about, and which I think might improve my ME/CFS, even before I start taking it, just doing the research on it puts me in a better, more optimistic mood. 90% of the time it turns out that the drug or supplement I tried had no benefits, and it's then back to the drawing board. But at least for several weeks I was in an optimistic hopeful mood.
POTS often arises after viral infection. Recent studies have found autoantibodies POTS patients which target the nerves of the autonomic nervous system. That seems a plausible mechanism to explain POTS; though the number of studies conducted is small, so this autoimmune research is still in its infancy.
At this point I don't think there is any scientific evidence for DNSR or other psychological therapies helping POTS. Though there are anecdotal stories. However, I imagine that thousands of patients may have tried DNSR, and with that many people, you are bound to get a few that just improve spontaneously.
You find spontaneous resolution in approximately 75% of younger POTS patients. Ref: 1
If we get some well-conducted double-blind placebo controlled trials showing DNSR can help POTS, then that might throw a different light on things.