ballard
Senior Member
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- 152
Brilliant! Thank you.
Any suggestions for a placard for #MillionsMissing in London 12 May
- Thread starter MEMum
- Start date
dangermouse
Senior Member
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- 430
I think the "WHY........" statements state exactly what we all want to know and it'd maybe prompt some to look into it too.
A really good goal would be for it to appear clearly in a BBC news broadcast.
My thought is to not alienate/confuse the innocently uninformed, who are the very people who need to become informed.
Mel9
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- NSW Australia
slysaint
Senior Member
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If only.
@MEMum, This started off as a two line placard slogan, but has kinda morphed...erm...into a rap song... Any musos in da house/on da board wanna turn this into a youtube video? (Joke
)
Title: Sound The Alarm - First Do No Harm!
The world needs to see
The neglect of ME
It's time now to face
The scandal of PACE
The charges they follow;
The study is hollow
Statistically flawed
Errors ignored
The method is weak
With more than one "tweak"
GET doesn't cure -
Just funding insure
Making us move
Won't symptoms improve
It just makes us worse
Puts us into reverse
CBT cannot treat
It's a type of deceit
Thinking you're well
Is useless as hell
When your body is ill
-it's not about will
We just do not choose
Our whole lives to lose
The "Malingerer" Myth
Is a theory that's FITH*
It's patient abuse
No room for excuse
The Trial on trial
The verdict: DENIAL
Guilty - all counts
It's time to renounce
ME is a prison
With bars of derision
Told that we're lazy
Deluded and crazy
But our bodies are broken
Suffering unspoken
A life sentence for us
With a label of MUS
Unable to trust
In a system unjust
Years of neglect
No care, no respect
No compassion or reason
It's medical treason*
No crime we've committed
It's time we're acquitted
We're not guilty of lying
PACE is illness denying
Too many have died
Because "science" has lied
Sound the alarm!
First do no harm!
Enough of inaction
We demand a retraction
The (PACE) boil needs Lancing
The truth is advancing
Real studies are proving
Why our bodies aren't moving
PACE is not science
We march (rap) in defiance
Cos the world needs to see
The neglect of ME
It's a work in progress, needs a bit of...tweaking... Not sure about the order, or the title (likely been done before), but I figure if I don't post it now, I'll forget I wrote it...(The probability of that is quite high. Statistically robust, one might say.)
Maybe some of the two liners might be placard worthy, with bullet points added underneath, highlighting some stats like the amount of money wasted etc, as other posters have mentioned.
*(FITH = F****d In The Head.)
*The phrase, "It's medical treason," refers to medicine in a broad sense, not any particular individual(s), because the way PWME are treated by the medical profession in general is a betrayal, in my opinion, of The Hippocratic Oath. So there.
)Title: Sound The Alarm - First Do No Harm!
The world needs to see
The neglect of ME
It's time now to face
The scandal of PACE
The charges they follow;
The study is hollow
Statistically flawed
Errors ignored
The method is weak
With more than one "tweak"
GET doesn't cure -
Just funding insure
Making us move
Won't symptoms improve
It just makes us worse
Puts us into reverse
CBT cannot treat
It's a type of deceit
Thinking you're well
Is useless as hell
When your body is ill
-it's not about will
We just do not choose
Our whole lives to lose
The "Malingerer" Myth
Is a theory that's FITH*
It's patient abuse
No room for excuse
The Trial on trial
The verdict: DENIAL
Guilty - all counts
It's time to renounce
ME is a prison
With bars of derision
Told that we're lazy
Deluded and crazy
But our bodies are broken
Suffering unspoken
A life sentence for us
With a label of MUS
Unable to trust
In a system unjust
Years of neglect
No care, no respect
No compassion or reason
It's medical treason*
No crime we've committed
It's time we're acquitted
We're not guilty of lying
PACE is illness denying
Too many have died
Because "science" has lied
Sound the alarm!
First do no harm!
Enough of inaction
We demand a retraction
The (PACE) boil needs Lancing
The truth is advancing
Real studies are proving
Why our bodies aren't moving
PACE is not science
We march (rap) in defiance
Cos the world needs to see
The neglect of ME
It's a work in progress, needs a bit of...tweaking... Not sure about the order, or the title (likely been done before), but I figure if I don't post it now, I'll forget I wrote it...(The probability of that is quite high. Statistically robust, one might say.)
Maybe some of the two liners might be placard worthy, with bullet points added underneath, highlighting some stats like the amount of money wasted etc, as other posters have mentioned.
*(FITH = F****d In The Head.)
*The phrase, "It's medical treason," refers to medicine in a broad sense, not any particular individual(s), because the way PWME are treated by the medical profession in general is a betrayal, in my opinion, of The Hippocratic Oath. So there.
- Messages
- 66
Just a few ideas:
- Don't Misrepresent ME
- CBT/GET Misrepresent ME
- I'm here because #Millions Missing can't be
- We need Bio Research not Psychotherapy
- Help us to help #Millions Missing due to ME
- #Millions Missing due to ignorance of ME
- We need you to help #Millions Missing
- If you don't understand, please ask about ME
- I'm here to raise awareness of ME
@MEMum, This started off as a two line placard slogan, but has kinda morphed...erm...into a rap song... Any musos in da house/on da board wanna turn this into a youtube video? (Joke
Title: Sound The Alarm - First Do No Harm!
This is so clever. You really have a talent with words.
@LA Cooper how can we best use this?
slysaint
Senior Member
- Messages
- 2,125
Just occurred to me the the #MM protest are smack bang in the middle of the Eurovision song contest (9th, 11th, final is on the 13th). Not sure how, but anyway to hijack coverage? I'm thinking more twitter/facebook?
Obviously too late to enter though
Obviously too late to enter though
slysaint
Senior Member
- Messages
- 2,125
Or you could dress up as Florence Nightingale (you could still wear the wig if you wanted altho it could send mixed messages).
Given all the coverage the Mental Health Awareness week (also this week) is getting, maybe placards with:
ME is NOT a mental illness
It might cause the usual controversy but at least provoke discussion.
).Given all the coverage the Mental Health Awareness week (also this week) is getting, maybe placards with:
ME is NOT a mental illness
It might cause the usual controversy but at least provoke discussion.
Maybe to avoid it being confused as mental health prejudice, tweak it slightly ...Or you could dress up as Florence Nightingale (you could still wear the wig if you wanted altho it could send mixed messages
Given all the coverage the Mental Health Awareness week (also this week) is getting, maybe placards with:
ME is NOT a mental illness
It might cause the usual controversy but at least provoke discussion.
ME is NOT a mental illness - so why do psychiatrists think they can cure it!
Make it a long wig and do Lady Godiva!Or you could dress up as Florence Nightingale (you could still wear the wig if you wanted altho it could send mixed messages
Murph
:)
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- 1,803
RESEARCH ME!
...so stop messing with our heads and hearts.
CFS/ME is bad enough. We don't need disbelief and ridicule added to our burdens.