Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Why would you want to get tested for xmrv? It'll be be a total waste of time/money till the study is replicated, the causality is established and the treatment become available.
Very interesting, thanks for the heads up. Welcome to the forum. I like this one much better than "that other one" lol.Apparently you guys got 2 new members today with almost the same name. I am really sorry to hear you've been sick for so long. I'm interesting in hearing about your results when you get them.
When I contacted them they said I should receive a test kit in 2 to 3 weeks and to call if I haven't heard from them by then. I heard someone on one of the forums say that they are only sending out a certain number at a time because they can't do too many at once.cfs since-I agree with you, and thank you for your answer. If I'm positive I'll start whatever treatment my I.D. doctor prescribes. I think the tests will be available next week? I don't know how long it takes to get the results. Do you know? gracenote is waiting for her results.
As for antivirals, I doubt that Acyclivir (for genital herpes) would even touch a retrovirus. Evenso, I stopped taking it last night.