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Any patients here with Obsessive Compulsive Disorder (OCD)? Naviaux Cell Danger Response

Messages
59
Location
Lancashire, UK
Hi all,

I was wondering if anyone here is living with Obsessive Compulsive Disorder (OCD) as well as ME/CFS?

I first developed OCD at 16, so long before any ME symptoms. I have not had treatment and have mostly kept it a secret. Luckily, it has remained mild--moderate and has never got severe. At its worst, I could spend 15-20 minutes repeating an action/compulsion (and possibily counting) until it felt 'right', and this could happen many times over the course of a day.

I am a firm believer that illnesses do not exist on their own, and that ultimately that different bodily systems are intrinsically connected at almost every level. I have pondered whether my OCD is in some way connected to my ME; for example, did OCD lead to structural or chemical changes in the brain that made me susceptible to ME?

I am intrigued to see that ME and OCD have been linked indirectly by Naviaux in his cell-danger hypothesis:
'According to Dr. Naviaux, “ASD and ME/CFS are on the same biological spectrum.” Dr. Naviaux has encountered teenagers with ASD who develop ME/CFS, and adults with ME/CFS who develop autism-like symptoms of mutism, social withdrawal, sensory hypersensitivities, and OCD-like symptoms.' https://www.omf.ngo/2017/10/19/treating-autism-and-mecfs-could-one-drug-do-both/

I'm fairly cetain I am not on the autistic spectrum, however, I know I have several autistic characteristics including some social withdrawal, sensory hypersensitivities, and the OCD.

I am not well read on Dr Naviaux's theory - maybe it's something to read into further.
 

drob31

Senior Member
Messages
1,487
Everything always seems to go back to a virus or perceived virus or pathogen. CDR seems like it's doing the same
 

pibee

Senior Member
Messages
304
I have some atypical OCD. I think i have PANDAS, not ME, or both.
(i have also very mild tics, chorea movements, blinking from 2016) and diagnosed Sjogrens,, POTS, and Hashimoto. So i really dont know if I have also ME.
 

prioris

Senior Member
Messages
622
do a search for WIRED AND TIRED ... look into Taurine, magnesium threonate and lithium orotate ... i manage mine well now ... but for decades i didn't know what was going on
 

prioris

Senior Member
Messages
622
2000 mg Taurine in morning and night addresses NMDA dysfunction ... the threonate is add on ... this was first thing that helped mahage it ... i also minimized glutamine, MSG foods etc

I replaced the above with lithium orotate and felt better in a week or so ... it helps regulate cakcium and probably other stuff in brain ... 5mg to 10 mg per day until better ... you play it by ear as far as maintenance ... i likely had a lithium deficiency ... Yasko gives it to her MTHFR patients