Any CFIDS Doc Around Exton, PA or Philadelphia?

[RedLineBoy]

I been struggling with CFIDS for over 10 years, since I was 19 to be exact. I am at a point in life where I can't seem to function. I wake up feeling tired, sick, lack of cognitive and not in mood much.

I know I have CMV & EBV but not sure if I have HHV 6. I was wondering if anyone knows of a doc in Philadelphia area or exton, pa area who is willing to offer Valcyte for treatment.

I know many docs are hesitated to prescribe Valcyte so that is the reason I ask. I hate to go to doctors and walk away nothing because half of them have no clue what I'm going through.

Thank you
Gonzales.

 

[*GG*]

Have you ever seen the Co-cure website listing:?

http://co-cure.org/USA_PA.htm

GG

 

[*GG*]

I saw written elsewhere that you have tried this list.

Here is another website, my Dr was on both. FYI

http://www.acamnet.org/site/c.ltJWJ4MPIwE/b.2071557/k.7C1E/ACAM_Homepage.htm

GG