Tammy
Senior Member
- Messages
- 2,189
- Location
- New Mexico
@Clerner..........first I want to say that I've been pretty ill for almost 20 years............so although the improvements seem too slow or too subtle at times.......they're enough to keep me going. I've never stayed on any given protocol for more than 3-4 months so I'm bound and determined to keep at it this time. I was diagnosed with CFS by a specialist back in 1997. I had high ebv titers. About 6 years ago I had another EBV test that showed reactivation.
My protocol:
Natures Answer Cats claw liquid tincture.(Uncaria tomentosa)............6 drops 2x daily.........for EBV
Natures Answer Licorice liquid tincture (Glycyrrhiza Glabra)...............6 drops 2x daily...........for EBV and adrenals
Solgar L-Lysine.......2,000mgs.............2x daily.........total 4,000mgs ............for EBV
Nutrex Hawaaian Spirulina Specifica......1 tsp daily........serving as my multi-vitamin, amino acids.....metals chelator, adrenals, thyroid
Vimergy Barley grass juice powder..........1 tsp daily....for adrenals, thyroid......pre-biotic
Eidons liquid zinc concentrate.........15 mgs daily..........good for immune system in general and also herpes virus variants.
Global Healing liquid B12 (80% methyl, 20% adeno).......2500 mcg's 2x daily..........I would like to double this in time.
Ester C.........2,000mgs 2x daily.......total 4,000mgs daily.
I'm almost 4 months into the protocol. I didn't start out with the above dosages........but worked up to them. The first two months were up and down with a couple of what some call herxes that lasted about 3-4 days where I felt more crappy than usual. The 3rd month was not much of anything good or bad. (I was tempted to stop protocol).....but glad I didn't because into the middle of the 4th month.......things kicked in a little and improvements moved up a notch.
The most significant improvement is the fluey all around crappy feeling.........that has improved the most. Also my brain doesn't feel inflamed like it did. The other thing I have noticed the most is improvement in my sleep. I could always go to sleep easily but my sleep was EXTREMELY restless. It is much less restless and is much more deeper. My symptoms aren't so extreme with ups and downs..............it feels like my body is running more even. The following symptoms have improved but like I said they are subtle improvements:
Energy, mood, muscle and joint pain, muscle weakness, cognitive, oi. These still wax and wane as to intensity.........but not to the extremes that they used to.
Sometimes when I don't think I'm making any progress I go back to my notes and have to remind myself that yes I am making progress..............also it helps that a friend of mine notices things that I don't even realize.
The following symptoms are gone. (they weren't debilitating) but it makes me realize that the supplements are doing something! Pain in scalp gone. pins and needles in lower legs gone. RLS gone. Pain in jaw area gone. Ringing in the ears gone. Areas on my body that itched like crazy and felt sunburned are gone.
I consider myself very early into this protocol...(considering the amount of time I've been ill)........I have a long way to go and I predict that if my progress continues it probably won't always be linear like I would like and I have to keep that in mind so that I don't lose hope.
Before I go I just want to say that I think diet is important but it's the one thing I havn't been ideal with. I try my best to stay away from wheat, dairy, bad sugars. Also I have been trying to eat healthy snacks more often to keep my adrenals happy.
Edit: I'm finishing up my 4th month on the protocol......not 5
My protocol:
Natures Answer Cats claw liquid tincture.(Uncaria tomentosa)............6 drops 2x daily.........for EBV
Natures Answer Licorice liquid tincture (Glycyrrhiza Glabra)...............6 drops 2x daily...........for EBV and adrenals
Solgar L-Lysine.......2,000mgs.............2x daily.........total 4,000mgs ............for EBV
Nutrex Hawaaian Spirulina Specifica......1 tsp daily........serving as my multi-vitamin, amino acids.....metals chelator, adrenals, thyroid
Vimergy Barley grass juice powder..........1 tsp daily....for adrenals, thyroid......pre-biotic
Eidons liquid zinc concentrate.........15 mgs daily..........good for immune system in general and also herpes virus variants.
Global Healing liquid B12 (80% methyl, 20% adeno).......2500 mcg's 2x daily..........I would like to double this in time.
Ester C.........2,000mgs 2x daily.......total 4,000mgs daily.
I'm almost 4 months into the protocol. I didn't start out with the above dosages........but worked up to them. The first two months were up and down with a couple of what some call herxes that lasted about 3-4 days where I felt more crappy than usual. The 3rd month was not much of anything good or bad. (I was tempted to stop protocol).....but glad I didn't because into the middle of the 4th month.......things kicked in a little and improvements moved up a notch.
The most significant improvement is the fluey all around crappy feeling.........that has improved the most. Also my brain doesn't feel inflamed like it did. The other thing I have noticed the most is improvement in my sleep. I could always go to sleep easily but my sleep was EXTREMELY restless. It is much less restless and is much more deeper. My symptoms aren't so extreme with ups and downs..............it feels like my body is running more even. The following symptoms have improved but like I said they are subtle improvements:
Energy, mood, muscle and joint pain, muscle weakness, cognitive, oi. These still wax and wane as to intensity.........but not to the extremes that they used to.
Sometimes when I don't think I'm making any progress I go back to my notes and have to remind myself that yes I am making progress..............also it helps that a friend of mine notices things that I don't even realize.
The following symptoms are gone. (they weren't debilitating) but it makes me realize that the supplements are doing something! Pain in scalp gone. pins and needles in lower legs gone. RLS gone. Pain in jaw area gone. Ringing in the ears gone. Areas on my body that itched like crazy and felt sunburned are gone.
I consider myself very early into this protocol...(considering the amount of time I've been ill)........I have a long way to go and I predict that if my progress continues it probably won't always be linear like I would like and I have to keep that in mind so that I don't lose hope.
Before I go I just want to say that I think diet is important but it's the one thing I havn't been ideal with. I try my best to stay away from wheat, dairy, bad sugars. Also I have been trying to eat healthy snacks more often to keep my adrenals happy.
Edit: I'm finishing up my 4th month on the protocol......not 5
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