!! This is Great news about medicare and humana. It's what I have as well. But I was on the web site, trying to search for tenofovir and raltegravir and it kep showing up blank. It was so aggravating! So, thank you for this... now I know I can possibly be able to go on a persoanl test trial if and when I and my doc decide to!
even though I was tested and XMRV was found, I plan on getting retested, to assertain what strain I have (mlv's). Then I will consider and start the research on which ARV's might be more effective than others.
Until then, although my primary doc is Very supportive, she is not an infectious disease specialist, and although she treates HIV patients, she is not comfortable with prescribing the ARV's... yet. I am sure she'd be very supportive of what I decide to do.
But, I know need to consider where to find an open minded infectious disease doctor. I am in Colorado, but will travel to see one if I cannot find one closer to home (Within 300 miles or so).
If anyone has ideas, please email me? Is there an 'underground' list of open minded docs interested in helping us? =p
unfortunately, it has come to my realization that humana/medicare will likely only cover these meds if we have an HIV disagnosis. one of us should call them to ask, and then report back here.