hi
. i took valcyte for over 3 years ... if valcyte didnt work, i just dont know if cidofovir will. i know peterson prefers cidofovir....so i guess i will see.
the thing that is really bothering me is, i have spoken to a lot of patients and have never run across anyone who has told me that cidofovir has worked for them when valcyte failed. if there were a few cases like that, i would feel more hopeful. i wish i could talk to more montoya patients.
charles..i was worried about CNS penetration too, but so many cases of brain infections have been resolved with cidofovir, that it must get up there enough, right? i do have a hell of a smouldering infection, though.
heap..i am hoping that i wont have to take any anti herpes drugs after cidofovir...maybe my immune system will be able to keep things in check by then, like it does with healthy people...if this works, that is.
its 1 infusion a week for the first 2 weeks, and then 1 every other week after that. for people who have been sick a very long time like me, i think this goes on for 1+ years. thats what peterson does. but i dont think i will be able to afford it that long...maybe 1 year at the very most.
i wish i could take foscarnet...arent strains that are resistant to valcyte supposed to be resistant to cidofovir too? i have heard of montoya going right to foscarnet if valcyte fails...so maybe cidofovir is a waste of time???
but no one will give foscarnet aside from montoya i am sure. and he has a 4-5 yr waiting list