Anti-thyroglobulin high range with normal thyroid levels on levo 50mg

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Kenjie

Senior Member
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208
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New Zealand
Gondwanaland said:
Going gluten free reduced my anti-TG antibodies by half, along with symptoms for a while.
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Im trying this. My anti thyroglobulin is high range above 300iu/ml .. i have also read natural iodine and selenium can bring it down. Im prepared to try anything as ive been very unwell again last 6mths with dizziness..hot flushes and all sorts of body out of whack symptoms. No idea what is causing it but wondered if antithyroid can contribute
 
K

Kenjie

Senior Member
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208
Location
New Zealand
Im not sure which way to turn.

I have seen doctors and specialists who have been of no help. And an endocrinologist wont see me.. instead theyre just sending a letter of care in the post which i feel is insufficient.
 
Learner1

Learner1

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Pacific Northwest
Kenjie said:
Can high range anti thyroid levels make you sick?
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Yes.

A gluten free diet, getting the right amount of iodine and selenium, and getting inflammation down are a good start. STTM, or Stop the Thyroid Madness is a good website for thyroid. The Thyroid UK message board may also be helpful in answering thyroid questions, with the caveat that they're not very well versed in ME/CFS and the many issues we have.

Also, levothyroxine might not be helping you as much as you need. Looking into T3 and natural thyroid products can help.

Optimizing thyroid function and reducing autoimmune activity is a good thing to do. Also make sure your adrenals get attention, if needed.
 
K

Kenjie

Senior Member
Messages
208
Location
New Zealand
Learner1 said:
Yes.

A gluten free diet, getting the right amount of iodine and selenium, and getting inflammation down are a good start. STTM, or Stop the Thyroid Madness is a good website for thyroid. The Thyroid UK message board may also be helpful in answering thyroid questions, with the caveat that they're not very well versed in ME/CFS and the many issues we have.

Also, levothyroxine might not be helping you as much as you need. Looking into T3 and natural thyroid products can help.

Optimizing thyroid function and reducing autoimmune activity is a good thing to do. Also make sure your adrenals get attention, if needed.
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All of these things interest me! Can i try making changes on my own or do i really need to find someone who WILL monitor my progress?

Ive been getting hot flushes. Dizziness. Low blood pressure. Low heart rate. Feeling of unsteady when walking. Have had near fainting spells. Headaches and pressure in forehead and behind eyes. Nausea and queasiness. Less appetite. General feeling of unwellness. Adrenal rush type feeling in chest.. comes and goes.. sometimes has lasted all day even when im not anxious and other times my body makes me feel like i am anxious! Its more my body than my mind. My mind is still sound although sometimes i cry out of sheer frustration.

Doctors have been of no help. Have had musdiagnosus's such as pseudo tumour cerebrai.. then pots which i dont think it specifucally is because i can still 'function' and move around carefully and some days can push through the symptoms i have.. although few months ago symptoms were worse and appeared to be pots.. but now im wondering about researching my thyroid as this is where my worst health issues began when i had my son.

I was diagnosed hypo through blood tests. Later put on medication but it was never looked further into. It has been a roller coaster ever since.

It fluctuates. Current symptoms also fluctuate. Been like this 6 months now after i was relatively ok for 1-2 yrs after overcoming chronic fatigue. I dont have that now fortunately BUT i am getting fatigue due to the pressure in head and on eyes.

Body has been out of whack but no medical practitioner or specialist thinks anything of the high A-TG.

Ent says my sinuses are clear and an opthamologist says my eyes are straining more due to aging process.

Id try anything to feel well and at least alleviate the head and eye pressure and dizziness. If i could do that it would make a huge difference.

At one point i was told i have enlarged blood vessels in eyes (usually indicatuve if high blood pressure in that area) but opthamologist wrote in letter that vessels are normal. This doesnt explain the head and eye pressure. Maybe the straining does but aging doesnt explain the other aweful scary symptoms.
 
K

Kenjie

Senior Member
Messages
208
Location
New Zealand
Ive lost 5 kg in 6 or so months Currently 78kg so no inability to lose weight.

Keen to know which way to go. Take matters into my own hands OR try to find someone who knows their stuff and will help. Have spent hundreds already!
 
K

Kenjie

Senior Member
Messages
208
Location
New Zealand
What is the best most effective alternative to levothyroxine?

A change does interest me. I have read about various alternatives but unsure which to use.. armour is mentioned often.. so is natural thyroid.. as well as thyroid gold or S. Altho unsure if you can pair natural iodine and selenium with any of these which i have read can lower A-TG.
 
Learner1

Learner1

Senior Member
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Location
Pacific Northwest
Hi Kenjie,

With all you have going on, it sounds like some sort of infection. Ideally, a functional medicine doctor would be best to help you - someone who looks at you as a system of systems.

If you can't get any help at all, look into ozone, which can kill viruses and bacteria. Spending 2-4 hours a week in a hyperbaric oxygen chamber for 3-4 weeks (or more, if it helps) might help. Divers use them, so if you can't find a doctor with one, look into the diving community.

Along with that, being on a whole food, Paleo type diet, which is gluten free, taking a good probiotic, 3-4g of vitamin C, and an immune support product like Designs for Health Immunotone Plus or Stamets Comprehensive Immune Support mushroom capsules might help.

Infections can produce most of the symptoms you mentioned, and put stress on your endocrine system.

If you find a doctor you can work with, see if you can be tested for:

SIBO and microbiome problems (stool test)
Immunoglobulins (G, A, E, M) with subclasses
Infections - depends on what's common where you've been, but things like:

- Lyme disease and coinfections
- Herpes viruses (HSV, EBV, CMV, zoster, HHV6...)
- Chlamydia pneumoniae, etc.
- Mycoplasma pneumoniae, etc.
- Parvovirus
- Cocksackie virus

I have a fantastic naturopathic doctor who has greatly helped me, and we wanted someone help dive further into my stubborn immune system, but I couldn't find a competent MD in a major US city, so I ended up having to fly to California for immune expertise, which is helping me on my journey. The MDs I saw locally were useless and condescending, and gave me no help. So, you're not alone. Be persistent!
 
K

Kenjie

Senior Member
Messages
208
Location
New Zealand
Learner1 said:
Hi Kenjie,

With all you have going on, it sounds like some sort of infection. Ideally, a functional medicine doctor would be best to help you - someone who looks at you as a system of systems.

If you can't get any help at all, look into ozone, which can kill viruses and bacteria. Spending 2-4 hours a week in a hyperbaric oxygen chamber for 3-4 weeks (or more, if it helps) might help. Divers use them, so if you can't find a doctor with one, look into the diving community.

Along with that, being on a whole food, Paleo type diet, which is gluten free, taking a good probiotic, 3-4g of vitamin C, and an immune support product like Designs for Health Immunotone Plus or Stamets Comprehensive Immune Support mushroom capsules might help.

Infections can produce most of the symptoms you mentioned, and put stress on your endocrine system.

If you find a doctor you can work with, see if you can be tested for:

SIBO and microbiome problems (stool test)
Immunoglobulins (G, A, E, M) with subclasses
Infections - depends on what's common where you've been, but things like:

- Lyme disease and coinfections
- Herpes viruses (HSV, EBV, CMV, zoster, HHV6...)
- Chlamydia pneumoniae, etc.
- Mycoplasma pneumoniae, etc.
- Parvovirus
- Cocksackie virus

I have a fantastic naturopathic doctor who has greatly helped me, and we wanted someone help dive further into my stubborn immune system, but I couldn't find a competent MD in a major US city, so I ended up having to fly to California for immune expertise, which is helping me on my journey. The MDs I saw locally were useless and condescending, and gave me no help. So, you're not alone. Be persistent!
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Yes you have a point. I had bacterial infections such as an overgrowth of staohylococcus in my nose which is now moderate which they consider normal of no concern.

I had over growth if lactobacillus in vaginal area which is now moderate growth and of no concern. I also had candida which is currently zero infection all clear.

I definitely need a fair amount of guidance as to what to do next. I had to move home to parents at 35 yrs old currently due to being unwell. Then i sold most of my belongings to pay the medical bills searching for answers through medical practitioners none of whom had any idea.

It was only a few weeks ago someone finally swabbed my nose as well as vag again to find i had infection where the nose swab could have taken place when this all started in december! I have been chasing my tail and currently lost confidence in doctors! Paying money fir nothing really. Sent close to 2k in 6 months and still no complete official answers.

I do have the herpes virus 'down below' although not currently active to my knowledge.

So right now i am looking for what to do or who to see next and i am still clueless. Wary of spending more money on people who cant tell me anything. I live in nz. And in the last few weeks my bills have mounted up to almost $1k again. Rediculous. Some of which has been on ct scans and specialists and more doctors.

Im just very lost now. I know changes must be made for sake of my health. But hard to know whats right for me.. i feel like an injured bird!
 
Learner1

Learner1

Senior Member
Messages
6,324
Location
Pacific Northwest
Kenjie said:
How do you recommend i find out if there is current infection or overgrowth?
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I gave you the list of tests above that you can have run, if you can talk a doctor into doing them. Many are very standard labs.

For gut, there's a good book, "The Food Intolerance Bible" by Anthony Haynes, which has little quizzes that might help you figure out if you have unwelcome things in your intestines and what you can do about them.

At any rate, I suggested you might have an infection because you reported so many symptoms. They can dramatically affect your adrenal, thyroid and female hormone function which can make you miserable.

However, I am not a doctor, and I may be totally wrong. I made a guess, but you could have something entirely different going on. I hope you can find answers, either by trial and error, or by finding a better doctor. I hope you figure it out...soon. :hug:
 
H

Helen

Senior Member
Messages
2,243
Sorry to hear that you couldn´t get help from the doctors you consulted. You can definitely feel very bad due to thyroid antibodies. Being low or high re thyroid hormones affect every cell in the body and may cause symptoms of many different kinds. Among others, it also affects the immune systeme so it´s important to get the antibodies under control.

I recommend reading these articles ( there are three) by Dr. Dach:
http://jeffreydachmd.com/hashimotos-thyroiditis-and-selenium-part-one-by-jeffrey-dach-md/
 
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CFS_for_19_years

CFS_for_19_years

Hoarder of biscuits
Messages
2,396
Location
USA
Dr. Izabella Wentz (pharmacist) says that many patients feel improvements after eliminating gluten, dairy and soy (the big three).
https://thyroidpharmacist.com/
https://thyroidpharmacist.com/about

I watched a series of free webinars she gave a few months ago right before of the launch of her newest book Hashimoto's Protocol. Many patients follow her.

Standard Process Thytrophin PMG is said to neutralize thyroid antibodies. It doesn't contain any thyroid hormone such as levothroxine. You can buy it without a prescription on eBay:

http://www.ebay.com/sch/i.html?_odk....H0.Xthytrophin.TRS0&_nkw=thytrophin&_sacat=0

http://www.naturalendocrinesolutions.com/archives/an-interview-with-dr-izabella-wentz/
Dr. Eric: Great, and thanks for that as well. I commonly recommend the product Thytrophin PMG to my patients with Hashimoto’s and have done so for many years. I found it interesting that you mention it in your book. I wondered if this is also something you commonly use in your practice to help neutralize the effects of the thyroid antibodies?

Dr. Izabella: Yes, I found it very helpful. I’ve seen people reduce their thyroid antibodies by taking that supplement. It’s interesting because the science behind it is kind of weird. You try to look at the description from the company and basically what it says is that it neutralizes the antibodies and it helps to regenerate thyroid tissue and then it gives basically a blueprint for what a healthy thyroid gland is supposed to look like.

I kind of thought it was a very interesting mechanism of action but that’s all I was able to find on it. I tried it myself and have had clients who have tried it and most people have reported very positive results from reducing thyroid antibodies and feeling better. What has been your experience with it?

Dr. Eric: As I said, I’ve used it for a number of years and it does a pretty good job of neutralizing the effects of the antibodies. Of course it’s not removing the trigger, which is important to mention too. And just taking the Thytrophin PMG, if that’s all you do then it might minimize the effects of the immune system attacking the thyroid gland, but you still need to change your lifestyle and diet and try to find the trigger and remove it. But I’m still using it in my practice and recommend it to many of my patients.

Dr. Izabella: Good. I like to think of it as a decoy, right?

Dr. Eric: Yes.

Dr. Izabella: To distract the immune system from your actual thyroid gland while you work on all these other things. But it’s not something, like you said, that should be used on its own. Unfortunately, if there was a magic pill that’s not necessarily it.

Dr. Eric: I agree, and it’s good that you describe it as a decoy because from what I understand that’s what it does. The immune system actually attacks the Thytrophin PMG and so it’s just taking a lot of burden off the actual thyroid gland, thus allowing the thyroid tissue to regenerate as you were talking about. Once again, we do need to focus on removing the trigger, and so thanks for mentioning that as far as a decoy goes.
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