eric_s
Senior Member
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- 1,925
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- Switzerland/Spain (Valencia)
Hi Nina
In my opinion, HGRVs to a good degree are make or break for the WPI. And to a part it's the WPI that has made them that. But the BWG or even Lipkin, as far as i'm concerned, won't necessarily be make or break for HGRVs, even though they are very important.
This is just my opinion and of course the WPI are free to do whatever they like, as far as the law allows them to do so. They can continue with their institute and people can donate to it, go there for treatment, etc. We are all free.
Sorry if this sounds a bit hard, but in the end we have a very big and serious problem. There are a couple of millions of people in the world who have this illness and they are without much help and face all sorts of adversities every day. The situation is very serious. So i feel like we need to set pretty high standards, if we don't, we will not be able to solve the problem or not in time. Of course too high standards might also hurt, that's true.
I agree researchers have the right to be wrong, but the WPI were very aggressive and confident about their findigs. If they aree right, then i think they did it very well. Also, as you know, i have always supported them and continue to do a number of things that will hopefully lead to more support for them. If they are right, then they deserve their place in history. But fact is, that we are not entirely sure yet, if they are correct about XMRV/MRVs. If they are wrong, then things look a bit different. It's not that i would want them to close then, that's really up to them or maybe even up to courts, depending on the circumstances, but i think that me, personally, i would look for another place to place my hopes on and to support. Because i would feel that they are not our best bet. But like i said earlier, we are all free and can choose for ourselves what we think will help us most. The problem is that we don't have so many alternatives and this is probably one of the main things we should try to change. How could one rather small institute solve this disease? They should have hundreds of employees and a budget of some billion $ for that, probably. And even if ME/CFS research had these resources, it would probably not be best to place them all on one institute. I hope a lot they will be right and they will get much more funding and can grow, don't misunderstand me...
I really have a lot of sympathy for the Whittemore family and for the WPI and am grateful for what they've done, but in the end this is not only about sympathy, but about the destiny of myself and millions of people, so it's the results that matter most. But that's really just my opinion.
In my opinion, HGRVs to a good degree are make or break for the WPI. And to a part it's the WPI that has made them that. But the BWG or even Lipkin, as far as i'm concerned, won't necessarily be make or break for HGRVs, even though they are very important.
This is just my opinion and of course the WPI are free to do whatever they like, as far as the law allows them to do so. They can continue with their institute and people can donate to it, go there for treatment, etc. We are all free.
Sorry if this sounds a bit hard, but in the end we have a very big and serious problem. There are a couple of millions of people in the world who have this illness and they are without much help and face all sorts of adversities every day. The situation is very serious. So i feel like we need to set pretty high standards, if we don't, we will not be able to solve the problem or not in time. Of course too high standards might also hurt, that's true.
I agree researchers have the right to be wrong, but the WPI were very aggressive and confident about their findigs. If they aree right, then i think they did it very well. Also, as you know, i have always supported them and continue to do a number of things that will hopefully lead to more support for them. If they are right, then they deserve their place in history. But fact is, that we are not entirely sure yet, if they are correct about XMRV/MRVs. If they are wrong, then things look a bit different. It's not that i would want them to close then, that's really up to them or maybe even up to courts, depending on the circumstances, but i think that me, personally, i would look for another place to place my hopes on and to support. Because i would feel that they are not our best bet. But like i said earlier, we are all free and can choose for ourselves what we think will help us most. The problem is that we don't have so many alternatives and this is probably one of the main things we should try to change. How could one rather small institute solve this disease? They should have hundreds of employees and a budget of some billion $ for that, probably. And even if ME/CFS research had these resources, it would probably not be best to place them all on one institute. I hope a lot they will be right and they will get much more funding and can grow, don't misunderstand me...
I really have a lot of sympathy for the Whittemore family and for the WPI and am grateful for what they've done, but in the end this is not only about sympathy, but about the destiny of myself and millions of people, so it's the results that matter most. But that's really just my opinion.