FernRhizome
Senior Member
- Messages
- 412
Sarahg:
Good move! I approve! Thanks, FernRhizome
Good move! I approve! Thanks, FernRhizome
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The question I have about the ancient retrovirus study we are in is why they are collecting blood samples every six months. I would assume they are looking at genetics but it doesn't seem like our genetics would change every six months for two years? Does anyone have any thoughts on this? And for many of us far into our illness we no longer have such severe ups and downs we just live at whatever level we've finally grounded at......and have learned how to live within that envelope. So I've been a bit mystified as to what they'll find with the repeated testing??? ~FernRhiziome
It's great they're trying to get more funding to look at other things, but for myself I know I won't be waiting that long for an answer to my XMRV status. I'll pay for it and they can have my results for free. ;-)
Shelley