Has anyone thought to contact Amy Docker Marcus from the WSJ?
I felt compelled to: email@example.com
I felt compelled to: firstname.lastname@example.org
Hello Ms Marcus,
Can I first congratulate you on everything you are doing to expose a prominent threat to compromise the US blood supply, and your continued vigor to report on this blatant attempt to silence the new human retrovirus XMRV from the public. Just that fact there is a chance that up to 7% of the blood donor population is infected is highly worrying. Could we really be talking about civilized ethic cleansing by keeping this issue from the general public. And I don't think that opinion is too strong a statement to suggest. The dealings that have occurred over the last 48 hours are nothing short of malfeasance. But personally this issue effects my future, and possibly my families future if I am found to be positive. Not to mention, the future of millions of other sufferers around the world.
I have suffered with ME (I'm afraid I cannot bring myself to use the acronym C.F.S.) from anything from 6-10 years, and continue to suffer today. For most of that time I ignored it, remained undiagnosed, and wondered why my body was changing. I wasn't even in my thirties. It wasn't until 2006 that I decided to seek medical help. I am in the UK where ME is considered, like most places around the world, a physcological, or somatoform condition. But to try and get that in writing from the likes of the UKs Department of Health is as unlikely as me dancing on the moon. I have numerous email responses from the UK Dept. of Health, and although they do concur that ME is a neurological disorder as recognized by the World Health Organization, we all know otherwise. I went on to be misdiagnosed with bowel disease (Dr. Mikovits has anecdotally mention bowel diseases may also be linked to the virus), which was later retracted, and I never discovered why. The point to this short history was, during that 8 years of being undiagnosed, and misdiagnosed, I could have quite easily donated my blood, and on many occasions too. The fact I could so easily contaminate the blood supply is based upon the poor diagnostic measures used to prove someone has ME, and many people with the condition have ample opportunity to donate their blood during these periods of limbo.
Dr. John Coffin, the eminent retrovirologist, has suggested XMRV could have been within humans for 50 years. That would tell me it would be an amazing stroke of luck if this virus has avoided any nations blood supply. With no approved diagnostic test to screen for the virus within the blood supplies, how many people a day are becoming infected with XMRV? That is a scary thought.
So why are the likes of the CDC behaving so irresponsibly, and not giving XMRV the benefit of doubt? Could XMRV prevalence reached such a tipping point that the likes of the CDC have conceded defeat in that this is something they cannot control, treat, and more realistically, afford? Post global recession, and we could have the biggest health issue ever known to man. 7% of the global population is over 400 million people. I'm not surprised the CDC is worried, and they have many more reasons to disprove the ME/XMRV link, than to show it to be fact.
When the ME/XMRV association was first announced last October, I'd only been officially diagnosed for just over a year; in ME terms, I was a baby. But I have since researched, asked questions, found mountains of inflammatory evidence and information that would make a AIDS patients toes curl. The ME story is drenched in controversy, and someone is making an awful lot of money to dodge the truth, and keep our status quo.
Please could you keep up this pressure on the CDC etc, for the future health of not just ME sufferers worldwide, but our children, and the people being unknowingly infected via blood transfusions. In respects to blood transfusion and ME infection, I do have some evidence that this has been very much suspected: http://www.mefmaction.net/Portals/0/docs/Blood Transfusions and CFS.pdf
Also people need to understand that ME is fatal, just as AIDS was before it was discovered: http://www.theoneclickgroup.co.uk/documents/ME-CFS_docs/Causes of Death - CFS Patients.pdf
People wont listen unless they fear it. I live in fear everyday that my heart will give in. My fear is not being able to say goodbye to my wife and children, and yet according to the UK NHS, my heart is fine, but only because I will not receive the relevant tests as part of the service:
And will I go on to be a silent voice in a sea of tragedy and scandal: http://www.ncf-net.org/memorial.htm
Apart from one person in the UK whom receive the autopsy her mother quite bravely fought for: http://www.sophiaandme.org.uk/
One of the very few people to receive ME as an unwanted cause of death on their death certificate.
We live in hope that Dr. Alter upholds his reputation by delivering a defiant blow that would rock the CDC to its knees. His study needs to be published, as it was, and as he already declared in Zagreb. I really hope you will continue to seek the truth on our behalf. We need you, more than youll ever know.