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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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http://www.msdiagnosed.net/forum/vie...9ed0ebc4f62186Ampligen helps a subset of patients with CFS/HHV-6 but those with higher virus titers need valcyte. That is the way my ID explained it to me. He said it has promise for those with active HHV-6 but low level active. After explaining that he told me that he thinks ampligen is useless for those with MS HHV-6 because our infection is in the central nervous system. He recommends stronger antivirals for MS with active HHV-6 ie valcyte or foscarnet.
The two measures of physical performance were Karnofsky Performance Score (KPS), used to measure activities of daily living; and exercise performance on a bicycle. KPS improved 43 percent from a severely debilitating level of 53 to a level of 76. A KPS score of 80 describes an individual who can perform normal activities with effort, but continues to have limited signs of the illness. On the bicycle testing, Belgium patients improved oxygen uptake significantly, from 1.16 liters/minute before the twice-weekly Ampligen administration of 200 to 400 mg, to 1.48 liters/minutes after treatment.
Just to elaborate on what laurelw said, technically anything from 1-200mg will cost the same as 200mg, and anything from 201-400mg will cost the same as 400mg. This is because the drug comes in 200mg bottles and they can't reuse them. I've heard most patients tolerate (eventually) the full dose, but Dr Peterson has said the optimal dose is variable for each patient and may be as low as 25mg. Earlier studies done with 200mg seemed to show benefit as well. I'm on my phone so can't source that but i will later.