Hi everyone,
This is my first post on this forum. I’ve been reading on here for years so this is kind of an iconic moment, haha. I have Lyme disease and ME and have been bedridden for quite some years. My main problems seem to be with detoxing, whatever I take (glutathione, binders, etc.), everything makes me sicker and I’m not able to tolerate these supplements in normal dosages. In the last few months some particular symptoms (what I now know very probably high ammonia symptoms) started getting worse and worse. I have all symptoms of high ammonia (immense pressure on the head and eyes, blurred vision, insomnia, difficulty breathing at times, anxiety, seizure like episodes, dizziness, nausea, accompanied by tachycardia and a lot of thirst at times). I’m awaiting my blood test results now. I do know that I always have low urea in my blood. The symptoms are bad and unbearable at the moment. I tried l-ornithine (250 mg) yesterday. I first got a weird reaction from it, where these symptoms were amplified for half an hour after taking it. After that I’ve felt the best and the most calm I’ve felt since days. But a few hours later the high ammonia symptoms came back already and I got a lot of detox symptoms and only got a lot sicker. I saw that l-ornithine is also part of phase 2 detox. I’ve read that a lot of people can’t tolerate l-ornithine, and some good doctors don’t advise against it because of the possible heavy side effects. Others seem to do great with it. I can definitely not take it, at least not right now. Does anyone have experience with other supplements against ammonia? I want to be very careful and not take anything that might put a strain on the liver because my liver enzymes are a little elevated. I’ll try lactulose, just because it’s so bad I have to do something, but I’m not happy to take it because I also have IBS and lactulose can make that worse. I’m also paying attention to my diet by limiting protein intake. I’m still determining if I might have a sulfur problem but I seem to react bad to high sulfur foods so I’m not eating them at the moment and I take a low dose molybdenum. I do have heterozygous CBS snps, a lot of NOS snps, and some OTC snps (this is regarding ortnithine).
I’m very curious to hear if some of you also have had these problems and experiences and I would like to hear your stores about this. Thank you in advance!
This is my first post on this forum. I’ve been reading on here for years so this is kind of an iconic moment, haha. I have Lyme disease and ME and have been bedridden for quite some years. My main problems seem to be with detoxing, whatever I take (glutathione, binders, etc.), everything makes me sicker and I’m not able to tolerate these supplements in normal dosages. In the last few months some particular symptoms (what I now know very probably high ammonia symptoms) started getting worse and worse. I have all symptoms of high ammonia (immense pressure on the head and eyes, blurred vision, insomnia, difficulty breathing at times, anxiety, seizure like episodes, dizziness, nausea, accompanied by tachycardia and a lot of thirst at times). I’m awaiting my blood test results now. I do know that I always have low urea in my blood. The symptoms are bad and unbearable at the moment. I tried l-ornithine (250 mg) yesterday. I first got a weird reaction from it, where these symptoms were amplified for half an hour after taking it. After that I’ve felt the best and the most calm I’ve felt since days. But a few hours later the high ammonia symptoms came back already and I got a lot of detox symptoms and only got a lot sicker. I saw that l-ornithine is also part of phase 2 detox. I’ve read that a lot of people can’t tolerate l-ornithine, and some good doctors don’t advise against it because of the possible heavy side effects. Others seem to do great with it. I can definitely not take it, at least not right now. Does anyone have experience with other supplements against ammonia? I want to be very careful and not take anything that might put a strain on the liver because my liver enzymes are a little elevated. I’ll try lactulose, just because it’s so bad I have to do something, but I’m not happy to take it because I also have IBS and lactulose can make that worse. I’m also paying attention to my diet by limiting protein intake. I’m still determining if I might have a sulfur problem but I seem to react bad to high sulfur foods so I’m not eating them at the moment and I take a low dose molybdenum. I do have heterozygous CBS snps, a lot of NOS snps, and some OTC snps (this is regarding ortnithine).
I’m very curious to hear if some of you also have had these problems and experiences and I would like to hear your stores about this. Thank you in advance!
