yeah, I am sure they are making lots of bucks on their $300, 100% refundable programs.
1) At $300 per person, you only really need 1000-1500 people to sign up to be well on your way to half a million dollars. That's only a tiny percentage of the worldwide ME/CFS community. We number in the millions.
Thanks! That will help have a meaningful discussion. My take is that there are programs that are helpful to some and "honest," and others that are secretive, very expensive and more or less exploit the patient community.
2) And some are deceptive in their sounding honest when they really are not. Some people are very good at reeling people in with extremely sympathetic pitch only to turn on the patient with "My system worked for these other people. Why isn't it working for you?" (I almost got reeled into one of those before researching the system. He had me in tears sometimes because of his gentle assurances that it wasn't up in my head but the more I learned the more I came to understand that it would be my fault if his system failed. I'm sorry but that made me angry and more suspicious of these programs when I run into them.)
3) And when you're a vulnerable sick person, I just cannot see you going back to fight a narcissistic person for that 100% refund.
@sunshine44, you said the ANS rewiring just wasn't for you. Did you get a refund on your money?
4) Anyone can claim to have had ME/CFS. It fits with any number of sales techniques that people employ.
39 powerful sales techniques to turn your prospects into customers (It fits very well with items 1,2, & 4 in this article.)
Look, I know a lot of ME/CFS patients who are blogging to helpfully share their experience with other patients. I visit a lot of those type of sites and while I'm sure they are making some money off their blogs, I have yet to see one promoting their own books/programs. I mean, in my mind, that just doesn't fit with someone who truly has ME/CFS. I think this disease just seems to make us especially empathetic to the suffering of others. While I would want to help others get better, I just wouldn't feel right trying to make a living off of my experiences at their expense especially since this disease impoverishes so many (myself included).
Anyway,
@sunshine44, I'm happy you are getting some relief and I understand that you are not trying to sell us anything. You just feel some joy that it is working for you so it's understandable that you would want to share it with us on the chance that someone here would benefit. I agree with you that it is important to research but I also think it is important to have a healthy (misnomer for this site) dose of scepticism when handing over money to someone who got "cured" with their "own system."