- Messages
- 81
- Location
- Barcelona
Hello everybody,
For the last months I've been stuck as for any clues regarding the cause of my CFS/ME. Lately, I had more blood tests done and I have a strong positive for cardiolipin autoantibodies. I'm also waiting for the Cell Trend results, since my doctors suspect I might have autoinmune dysautonomia/POTS.
Last year I went up from being severe to moderate (major improvement), or from 3 to 6-7 in an energy scale with gut support, medicinal mushrooms and adrenal support. I've been on a keto / paleo / AIP diet because my doctors suspected autoimmunity even if they hadn't found any specific markers until now.
I wonder if I could strongly believe that yes, I'm into this autoinmune subset. I'm worried that I've started LDN almost 3 weeks ago and I'm getting horrid insomnia / sleep disruption and my basal state is now worse than 4 weeks ago, where I could go out and walk 4-5 times per week. Now I'm mostly housebound again due to side effects. I'm at 0.50 mg now and wondering if LDN can be taken if you are of autoinmune subset.
One of my worse symptoms is constant dizziness which can be crippling. It's not like vertigo, I have it only when I walk and the feeling is I'm in a boat with no contact with the earth whatsoever. I've had very bad tired legs (specially from under the knees) due to vascular issues that could be connected to the autoantibodies for years, to the point of not being able to walk, because of the pain and the lack of circulation specially in summer.
I wonder if this autoantibodies could be related to Coxsackie B or other nasty viruses. I'm just trying to get to the root of it.
I really hope that I get proper treatment for this, hoping to see some light at last.
For the last months I've been stuck as for any clues regarding the cause of my CFS/ME. Lately, I had more blood tests done and I have a strong positive for cardiolipin autoantibodies. I'm also waiting for the Cell Trend results, since my doctors suspect I might have autoinmune dysautonomia/POTS.
Last year I went up from being severe to moderate (major improvement), or from 3 to 6-7 in an energy scale with gut support, medicinal mushrooms and adrenal support. I've been on a keto / paleo / AIP diet because my doctors suspected autoimmunity even if they hadn't found any specific markers until now.
I wonder if I could strongly believe that yes, I'm into this autoinmune subset. I'm worried that I've started LDN almost 3 weeks ago and I'm getting horrid insomnia / sleep disruption and my basal state is now worse than 4 weeks ago, where I could go out and walk 4-5 times per week. Now I'm mostly housebound again due to side effects. I'm at 0.50 mg now and wondering if LDN can be taken if you are of autoinmune subset.
One of my worse symptoms is constant dizziness which can be crippling. It's not like vertigo, I have it only when I walk and the feeling is I'm in a boat with no contact with the earth whatsoever. I've had very bad tired legs (specially from under the knees) due to vascular issues that could be connected to the autoantibodies for years, to the point of not being able to walk, because of the pain and the lack of circulation specially in summer.
I wonder if this autoantibodies could be related to Coxsackie B or other nasty viruses. I'm just trying to get to the root of it.
I really hope that I get proper treatment for this, hoping to see some light at last.